Joined: 4/28/2010
Posts: 1
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hi everybody
my name is debby and my son of almost 7 has ependymoma that started in the brain and spread out to his lowerback...
its almost a year ago he was diagnosed with this terrible disease..
his last MRI came out clean, but they told me he is still high risk...
he doesn't react good on chemotherapy and know we are going to start the new clinical trial with lapatinib...
i am very scared still...because until know i didn't fined any survivor story of pediatric ependymoma..please is there anyone who can give me some hope that this nightmare can end...
please contact me...to this email:
dvora78@hotmail.com
thank you for your time
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