About the AEO and PEO Projects
Ependymoma can occur to individuals across lifespan regardless of age. With the ultimate goal of ensuring a uniformly high standard of care for all patients and improving our understanding of the issues faced by patients with this rare tumor, we have initiated the Adult and Pediatrics Ependymoma Outcomes Project (AEO and PEO). These are exciting initiatives that provide the opportunity to learn about the health status of both adults and children diagnosed with ependymoma and to use this information to improve patient care.
The CERN Foundation designed this project specifically for people (both adults and children) with ependymoma. Andy patient diagnosed with an ependymoma is welcomed to participate. For children (less than 17 years of age), we ask that both parent or proxy and the child participate. Information collected from our series of surveys will be analyzed by medical professionals and used to identify unique trends and potential ways of improving the care of ependymoma patients. For childhood ependymoma survivors, we suggest taking the PEO survey if under the age of 35. However, demographic and clinical information can be completed by the patient not the parent. Please contact us if you have any questions about this scenario.
Key Objectives of the Ependymoma Outcomes Projects
- Gather information on the treatment strategies and health status of patients with ependymoma in the United States
- Disseminate information to health care providers on the symptoms, treatment and outcomes of patients with ependymoma to improve health care practices
- Publish objective data on trends and regional differences in the care of patients with ependymoma, with the goal to improve and standardize care
- Develop new treatment strategies based on this data for future clinical trials to improve survival and outcome