News and Research

CERN Foundation Releases Six Videos on Ependymoma
The Collaborative Ependymoma Research Network, known as the CERN Foundation, is excited to announce the launch of six new video segments featuring discussion from CERN Members on various issues relating to ependymoma. Careful planning between Patient Advocates and Medical Professionals

2010 Semi-Annual CERN Meeting
Semi Annual Meeting Summary The third Semi Annual Meeting for the CERN Foundation was held on Wednesday, April 14, 2010, at the Houstonian Hotel in Houston Texas. Prior to the start of the meeting, CERN leaders participated  with a videotaping of segments

Ependymoma Statistical Report
The Collaborative Ependymoma Research Network (CERN), in collaboration with the Central Brain Tumor Registry of the United States (CBTRUS), has prepared this report on the incidence, prevalence, lifetime risk, and survival associated with ependymoma. All data in this report are

Wonderful Recap of SNO experience from IBTA - Featuring CERN Members
The Quality of Life session at the 2009 Joint Meeting of SNO and AANS CNS Section on Tumors was a huge success. Kathy Oliver, Co Director of the International Brain Tumor Alliance (IBTA) provides a wonderful summary of the events

CERN Foundation posted on the Oncology Nursing Society Virtual Community
An announcement regarding the CERN Foundation was featured on the Oncology Nursing Society (ONS) Neuro Oncology Special Interest Group (SIG) virtual community. This will remain within the virtual community for the next six months. This information is available to all

National Brain Tumor Society featured EO Project in E-Newsletter
  The Ependymoma Outcomes (EO) Project is successfully reaching out to adult ependymoma survivors thanks to the help of the National Brain Tumor Society (NBTS). Colleagues at the NBTS placed a note about the EO Project in their monthly E Newsletter.

CERN Foundation scientists make advances in understanding the origin of ependymoma, a rare form of brain tumor
The Collaborative Ependymoma Research Network (CERN) Foundation announces a major advance in the fight against ependymoma, a rare form of brain tumor.Members of the CERN Foundation, led by scientists from the St. Jude Children's Research Hospital, have developed a new

Berubicin: A Novel Topoisomerase II Inhibitor with Activity in Ependymoma
Ependymomas are rare central nervous system tumors, occurring predominantly in children. Tumor size can make gross total resection exceptionally difficult, and post operative radiation may be of benefit but CNS toxicity prevents its wide application in patients <2yrs. Development of

Adult Ependymal Tumors: Prognosis and the MDACC Experience.
Adult Ependymal Tumors Prognosis and The MDACC Experience Ependymomas in adults are rare and often misdiagnosed. There are limited reports which have centralized confirmation of diagnosis and evaluation of prognosis. This study reports on a series of adult patients with

Ependymomas of the Adult: Molecular Biology and Treatment
In this study, researchers review state of the art and relevant advances in the molecular biology and management of ependymomas of the adult. Authored by Robert Ruda, Mark Gilbert and Riccardo Soffietti, Current Opinion in Neurology, 2008

Telomerase Inhibition Induces Acute ATM-Dependent Growth Arrest in Human Astrocytomas
In this study, researchers examined the degree of hTERT, the catalytic subunit of telomerase, expression in paediatric high grade astrocytoma and to explore the potential of telomerase inhibition as a therapy for these tumours. Authored by Vincent C.H. Wong, Jing

Telomere Maintenance and Dysfunction Predict Recurrence in Paediatric Ependymoma
In this study, researchers report the biology of telomere maintenance, its prognostic significance and the effect on response to therapy in paediatric ependymoma in vivo.  Authored by U Tabori, V Wong, J Ma, M Shago, N Alon, J Rutka, E