Inspiration Stories

This portion of the website is dedicated to patients and caregivers by allowing them to share their ependymoma stories.

This organization would never have been formed if it weren’t for amazing people like you. It is imperative to share information, as this is a core value of our foundation. Please, take time to read about some remarkable lives and if you feel comfortable, submit some insight into your own personal journey.

Enough is Enough

— Categories: Categories: Adult   Brain     Posted on November 30, 2018

Gabrielle learned how to live in the here and now.

Gaining a New Perspective

— Categories: Categories: Adult   Brain     Posted on October 26, 2018

Kristina overcomes ependymoma treatment and gains a new perspective on life.

Determined to Defeat Ependymoma

— Categories: Categories: Adult   Spine     Posted on May 23, 2018

Steven shares how he continues to perservere after having an ependymoma in his spinal cord.

I’m Here!

— Categories: Categories: Adult   Spine     Posted on April 27, 2018

Shannon continues to overcome limitations every day from her anaplastic ependymoma.

Life is a Roller Coaster

— Categories: Categories: Adult   Spine     Posted on October 31, 2017

Prashant was misdiagnosed for months until an MRI revealed an ependymoma tumor in his spine.

Shedding Light on This Rare Disease

— Categories: Categories: Adult   Spine     Posted on September 27, 2017

Sarah discovered an ependymoma tumor blocking her spinal canal after two unmedicated C-sections.

Along For the Ride

— Categories: Categories: Adult   Brain     Posted on June 7, 2017

While Hilary was traveling around Northeast Asia, she became sick and her tumour made its presence known – a grade II ependymoma.

A Unique Bond Between a Father and Daughter

— Categories: Categories: Adult   Brain     Posted on April 24, 2017

Allie and her father both had brain surgery to remove a tumor resulting in a deeper relationship.

A Story of Recovery from Spinal Cord Tumor Surgery

— Categories: Categories: Adult   Spine     Posted on February 10, 2017

Dawn shares what it's like recovering from surgery while giving those who are on a similar journey the reassurance that they are not alone.

Michelle My Hero

— Categories: Categories: Adult   Spine     Posted on January 18, 2017

Michelle's neurosurgeon discovered multiple tumors along her spine, but through it all she remains positive.

An Extraordinary Destiny

— Categories: Categories: Adult   Brain     Posted on November 2, 2016

Adam shares his experiences by writing a book that includes quotes that gave him encouragement during his ependymoma treatment.

A Family’s Diagnosis Inspires Book, “If You Love Me, Take Me Now”

— Categories: Categories: Adult   Brain     Posted on June 4, 2015

Neurologists called Steve with the news that they found an ependymoma tumor attached to his brain stem. This inspired him to write a book.

Ependymoma Does Not Define Us

— Categories: Categories: Adult   Spine     Posted on January 16, 2015

While Vickie was stepping out of the shower, she slipped and fell on her tailbone, causing excruciating pain. An MRI revealed a spinal ependymoma.

Learning to Live Everyday Like It Is Our Last

— Categories: Categories: Adult   Spine     Posted on November 22, 2014

Eileen’s son pulled on her hair to catch his fall causing a huge shock up her spine. This led her to the ER where doctors found an intramedullary ependymoma.

Linda Shares Her Experiences To Help Others

— Categories: Categories: Adult   Brain     Posted on August 24, 2014

For the past fourteen years, Linda has overcome two craniotomies, stereotactic radiotherapy and hopes her story will help others with similar circumstances.

Kimberlee is a Fighter

— Categories: Categories: Adult   Brain     Posted on July 11, 2014

Kimberlee was diagnosed with an ependymoma and had many physical and mental problems that she had to overcome.

Chelsea’s “New Normal”

— Categories: Categories: Adult   Spine     Posted on May 6, 2014

After being married for eight months and trying for her first baby, Chelsea began having horrible back pains. An MRI revealed a tumor in her spine, an intramedullary ependymoma.

A New Perspective on Life

— Categories: Categories: Adult   Brain     Posted on April 14, 2014

After having unusual blackouts and changes with his vision, Trevor’s scans revealed an ependymoma in his left occipital lobe.

Every Cloud Has Its Silver Lining

— Categories: Categories: Adult   Spine     Posted on September 10, 2013

After being diagnosed with myxopapillary ependymoma, Anne Moriarty struggled to get pregnant. Her outlook on life has been forever changed.

Life Is More Than The X’s And O’s

— Categories: Categories: Adult   Spine     Posted on June 11, 2013

Coach Casey was diagnosed with spinal ependymoma and lives by the motto, “If it is to be, it is up to me.”

Tony Adjusts to His New Body

— Categories: Categories: Adult   Spine     Posted on April 12, 2013

After excruciating neck pain, Tony’s MRI revealed an intramedullary ependymoma. After being diagnosed and rehabilitation, Tony had to adjust to his new body.

Intramedullary Ependymoma – My Journey

— Categories: Categories: Adult   Spine     Posted on February 13, 2013

Sarah’s blog, documents her journey with intramedullary ependymoma: a real look into surgery, rehabilitation, and treatment with a little bit of humor.

Kendal No Longer Takes Anything for Granted

— Categories: Categories: Adult   Brain     Posted on January 2, 2013

Kendal spent a decade plagued with numbness, tingling, seizures, and numerous tests. He was finally diagnosed with an anaplastic ependymoma.

Diagnosis Inspires Missy to Help Others

— Categories: Categories: Adult   Spine     Posted on December 1, 2012

Everyone told Missy that headaches and neck pain are normal signs of stress. She was later diagnosed with a benign intramedullary ependymoma.

Mother Diagnosed Never Gives Up

— Categories: Categories: Adult   Brain     Posted on September 27, 2012

Jennifer lives by the motto, “Never, never, never give up.”

Boyden Celebrates Life

— Categories: Categories: Adult   Brain     Posted on July 7, 2012

Greg was diagnosed with grade II ependymoma and then treated. He shares his advice and his new enthusiasm for life after no signs of regrowth.

Dealing with the Weight of a Diagnosis

— Categories: Categories: Adult   Brain     Posted on April 14, 2012

Mark was diagnosed with an anaplastic epenymoma. He shares his advice and wisdom on dealing with the diagnosis.

Words of Wisdom from Adult Ependymoma Survivor

— Categories: Categories: Adult   Brain     Posted on March 25, 2012

Matt was gracious to share with us his story of navigating through his journey with ependymoma. Read more as he shares his advice on dealing with the medical community and ependymoma.

One Day at a Time

— Categories: Categories: Adult   Brain     Posted on February 16, 2012

Kimberly, daughter of an ependymoma survivor, shares her advice and unique perspective on coping with the experience of having a loved one fight cancer.

Five Pieces of Advice

— Categories: Categories: Adult   Brain     Posted on January 4, 2012

Bruce, an ependymoma survivor, brain tumor advocate, facilitator of two brain tumor support groups, grandfather, believer, and teller of bad jokes shares his advice.

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