News

CERN Members are a collaborative network of researchers and medical providers who are constantly making new discoveries.

We are committed to being a resource to patients, their family and caregivers and the medical community regarding the latest in ependymoma research, diagnosis and treatment.

Recent Advances in the Classification and Treatment of Ependymomas

— Categories: Ependymoma Research Articles     Posted on December 5, 2017

Ependymomas are rare neuroepithelial primary central nervous system (CNS) tumors that affect children and adult patients in which they make up 1.8% of all primary CNS tumors. In this article, authors review the classification, pathology and current clinical approaches.

2018 CERN Calendar

— Categories: Press Release     Posted on November 22, 2017

To celebrate the heroic efforts from members of our community and to spread awareness about ependymoma, the CERN Foundation created a 2018 calendar featuring inspiration stories, disease information, and CERN programs to inspire, influence and impact others.

Participate in the Ependymoma Outcomes and Risk Study

— Categories: Press Release     Posted on August 23, 2017

If you take part in this study, we will ask you to complete an online survey and submit a saliva sample that will be used for genetic testing to evaluate for risk factors.

2017 Ependymoma Awareness Day Outreach

— Categories: Press Release     Posted on June 20, 2017

In a groundswell of international support, patients, caregivers, professionals and advocates participated in a variety of events marking May 8, 2017, as Ependymoma Awareness Day.

Travis Vs. Ependymoma

— Categories: Press Release     Posted on June 16, 2017

Travis' co-workers help support their friend in his fight against brain cancer.

2017 Ependymoma Awareness Day

— Categories: Press Release     Posted on May 26, 2017

Patients, caregivers and medical professionals from around the world dedicated May 8, 2017, as the sixth annual Ependymoma Awareness Day!

Tyler’s Girlfriend Gives Ultimate Christmas Present

— Categories: Press Release     Posted on March 29, 2017

Tyler's girlfriend, Nicole, holds fundraiser at a local bar to raise funds for the CERN Foundation.

The CERN Foundation Launches New Website

— Categories: Press Release     Posted on January 19, 2017

The CERN Foundation is committed to improving the care and outcome of people with ependymoma. In order to better reach this goal, CERN underwent an intensive website redevelopment process.

CERN Supports Molecular Classification of Ependymoma Panel Discussion

— Categories: Press Release     Posted on January 18, 2017

The 2016 Annual Meeting of the Society for Neuro-Oncology (SNO) was held from November 17-20 in Scottsdale, Arizona. During the meeting on Friday, November 18, the CERN Foundation supported a special evening session.

Epigenetics Help Find Prognosis for Posterior Fossa Ependymomas

— Categories: Ependymoma Research Articles     Posted on January 18, 2017

Ependymomas are brain or spinal tumors that can occur in people of all ages within the central nervous system. The prognosis of these tumors does not necessarily correlate with tumor grade and there are no genetic mutations that can be used to classify these tumors.

Clinical Presentation and Outcomes for Adult Ependymoma Patients

— Categories: CERN Research Articles     Posted on September 28, 2016

The Adult Ependymoma Outcomes project was initiated to capture pertinent patient information on various aspects of one’s care through self-reported experience to evaluate how this rare tumor impacts patients.

CERN Foundation Releases People of CERN Series

— Categories: Press Release     Posted on September 26, 2016

This series of short films, produced by the CERN Foundation, aims to humanize the experience of ependymoma by sharing real people's stories and ultimately raising awareness about this rare form of brain and spinal cancer.

Second Edition of Ependymoma Guide Published

— Categories: Press Release     Posted on August 22, 2016

The CERN Foundation completed the second edition of the ependymoma guide as a resource for patients, caregivers and advocates.

CERN Tissue Samples Used to Analyze the Impact of Surgery and Radiation on Ependymoma

— Categories: CERN Research Articles     Posted on June 8, 2016

Ependymoma is the third most common brain tumor in children. The current therapy for posterior fossa ependymoma in children is surgery followed by radiation therapy.

Steve Cox Delivers Speech at 2016 Ependymoma Awareness Day

— Categories: Press Release     Posted on June 5, 2016

Steve gave these remarks to patients and caregivers at Georgetown University Hotel and Conference Center during the National Brain Tumor Society’s Head to the Hill event.

2016 Ependymoma Awareness Day Outreach

— Categories: Press Release     Posted on May 24, 2016

In a groundswell of international support, patients, caregivers, professionals and advocates participated in a variety of events marking May 2, 2016, as Ependymoma Awareness Day.

CERN Supported Research Uses New Approach to Calculate Drug Doses for Ependymoma Treatment

— Categories: CERN Research Articles     Posted on May 10, 2016

St. Jude Children’s Research Hospital scientists have used sophisticated pharmacologic modeling and simulation to translate preclinical findings into a phase I clinical trial of a chemotherapy, 5-FU, for ependymoma treatment.

2016 Ependymoma Awareness Day

— Categories: Press Release     Posted on May 3, 2016

Patients, caregivers and medical professionals from around the word dedicated May 2, 2016, as the fifth annual Ependymoma Awareness Day!

CERN Progress Update

— Categories: Press Release     Posted on January 25, 2016

Established in 2007, the CERN Foundation remains focused on improving the lives of children and adults worldwide diagnosed with ependymoma.

CERN Ependymoma Fellowship Recipient Announced

— Categories: Press Release     Posted on January 5, 2016

In late 2015, the CERN Foundation was pleased to announce that Vijay Ramaswamy, MD, PhD, was selected as the inaugural recipient of the CERN Basic Science Ependymoma Research Fellowship.

CERN Investigators Publish Paper on the Biology and Management of Ependymomas

— Categories: CERN Research Articles     Posted on January 4, 2016

Ependymomas are rare primary tumors of the central nervous system in children and adults that comprise histologically similar but genetically distinct subgroups.

CERN Foundation At The 2015 Annual Society For Neuro-Oncology Meeting

— Categories: Press Release     Posted on December 14, 2015

The 2015 Annual Meeting of the Society for Neuro-Oncology (SNO) was held from November 19-22, 2015 in San Antonio, TX. Researchers supported by the CERN Foundation were well represented at the meeting.

2015 Annual CERN Meeting

— Categories: Press Release     Posted on December 10, 2015

The CERN Foundation held a productive meeting on November 20, 2015 at the Marriott Riverwalk Hotel in San Antonio, TX. Thirty investigators from across the CERN network participated in a lively yet informal sharing of information on a broad range of ependymoma topics.

Coping With The Holidays

— Categories: Press Release     Posted on December 7, 2015

The holiday season is often time of tradition and renewed hope. If you or a loved one has an ependymoma, or if you have lost someone to the disease, the holidays may be more stressful. This can make it hard to feel connected, unable to meet demands, and out of sync with those around you.

No Shave November

— Categories: Press Release     Posted on December 1, 2015

Hotchkiss Insurance in Houston, TX held a “No Shave” contest and fundraiser for the month of November to support Diane Hotchkiss and raise funds for the CERN Foundation.

A Sweet Gesture Goes A Long Way

— Categories: Press Release     Posted on November 9, 2015

One bake shop owner decided she wanted to help out a family in need and support ependymoma research.

Participate In Our Online Ependymoma Outcomes Surveys

— Categories: Press Release     Posted on September 18, 2015

The Ependymoma Outcomes Projects are online surveys created for both adults (Adult Ependymoma Outcomes or AEO) and children with ependymoma (Pediatric Ependymoma Outcomes or PEO).

CERN Investigators Publish Paper on 5-FU

— Categories: CERN Research Articles     Posted on August 6, 2015

A phase I study of the drug called 5-fluorouracil (5-FU) examined the pharmacokinetics, safety, and tolerable dosing for children and young adults with recurrent ependymoma.

2015 Ependymoma Awareness Day Outreach

— Categories: Press Release     Posted on June 6, 2015

In a groundswell of international support, patients, caregivers, professionals and advocates participated in a variety of events marking May 5, 2015, as Ependymoma Awareness Day.

CERN Postdoctoral Basic Science Research Fellowship

— Categories: Press Release     Posted on May 27, 2015

The CERN Foundation is committed to improving the care and outcome of people with ependymoma through community support and research efforts. Through the funding of a postdoctoral fellowship, the CERN Foundation supports training opportunities.

Kimberly Speaks At 2015 Ependymoma Awareness Day

— Categories: Press Release     Posted on May 16, 2015

Kimberly gave these remarks to patients and caregivers at St. Jude Children’s Research Hospital, who gathered to raise awareness of this rare form of brain and spine cancer.

CERN Investigators Publish Paper on Phase II Study

— Categories: CERN Research Articles     Posted on May 14, 2015

In an open-label, two-stage, phase II study (CERN 08-01), CERN investigators aim to investigate the effect of bevacizumab and lapatinib in children with recurrent or refractory ependymoma.

CERN Investigators Publish Paper on the Molecular Classification of Ependymal Tumors

— Categories: CERN Research Articles     Posted on May 11, 2015

Ependymal tumors are currently classified and graded solely by histopathology (microscopic examination of tissue in order to study the manifestations of disease). This classification, however, is limited on predicting patients’ outcome.

CERN Principal Investigator Publishes Paper That Identifies Eighteen Genes That Contribute to Childhood Ependymoma

— Categories: CERN Research Articles     Posted on May 6, 2015

The CERN Foundation has supported a major discovery in the fight against ependymoma. This discovery, led by scientists from St. Jude Children’s Research Hospital, lays the foundation for developing new, much needed chemotherapy agents and finds evidence that anti-cholesterol drugs called statins slow growth of ependymoma tumor cells.

CERN Investigators Publish Paper on the Side Effects of Corticosteroids

— Categories: CERN Research Articles     Posted on February 9, 2015

Corticosteroids can have many side effects that impact the patient’s quality of life and functional status. (Corticosteroids are a class of chemicals that includes the steroid hormones that are produced in the adrenal cortex of vertebrates).

CERN Foundation At The 2014 Annual Society For Neuro-Oncology Meeting

— Categories: Press Release     Posted on December 29, 2014

This is the CERN Foundation podcast for the winter of 2014. In this special podcast, we have highlighted some of the important research presented by CERN-supported investigators at the 19th Annual Scientific Meeting and Education Day of the Society for Neuro-Oncology.

CERN Investigators Publish Paper on Symptoms and Socio-economic Impact of Ependymoma

— Categories: CERN Research Articles     Posted on October 31, 2014

Find out what we learned from our Ependymoma Outcomes Projects (patient symptoms, function status and costs encountered by patients and families).

Deriving Therapies for Children with Primary CNS Tumors Using Pharmacokinetic Modeling and Simulation of Cerebral Microdialysis Data

— Categories: Ependymoma Research Articles     Posted on June 16, 2014

The treatment of children with ependymoma and CNS tumors continues to be a challenge despite recent advances in technology and diagnostics. In this overview, St. Jude Children’s Research Hospital describes their approach for identifying and evaluating active anticancer drugs through a process that enables rational translation from the lab to the clinic.

Foresters Families Join Forces to Create Awareness for Rare Brain Tumor

— Categories: Press Release     Posted on May 13, 2014

The Foresters will be holding an Ependymoma Awareness Game on July 25, 2015.

CERN Project V: Awareness, Outreach and Outcomes

— Categories: Press Release     Posted on May 13, 2014

We met with Charles “Chas” Haynes, the Executive Director of the CERN Foundation, and Dr. Terri Armstrong, Editor in Chief of the new CERN Foundation Resource Guide and head of the Ependymoma Outcomes Project, both of whom are responsible for leading Project V.

2014 Ependymoma Awareness Day Outreach

— Categories: Press Release     Posted on May 7, 2014

In an effort to raise awareness of ependymoma, patients, caregivers and medical professionals from around the world dedicated April 10, 2014, as the third annual Ependymoma Awareness Day.

Ask CERN A Question Podcast

— Categories: Press Release     Posted on May 1, 2014

CERN Investigators answered questions submitted by the ependymoma community. This podcast is designed to provide information about ependymoma and the CERN Foundation’s five projects.

Kimberly Wallgren Speaks At 2014 Ependymoma Awareness Day

— Categories: Press Release     Posted on April 21, 2014

Kimberly gave these remarks to CERN researchers from a range of medical institutions across the country during the 2014 Ependymoma Awarness Day butterfly release.

FREE Ependymoma Guide Published

— Categories: Press Release     Posted on April 18, 2014

The CERN Foundation completed an ependymoma guide as a resource for patients, caregivers and advocates.

Ask CERN A Question!

— Categories: Press Release     Posted on April 6, 2014

The CERN Foundation is soliciting your questions for our first ever podcast!

CERN Principal Investigator Publishes Landmark Paper on Gene Sequencing

— Categories: CERN Research Articles     Posted on February 27, 2014

The CERN Foundation announces a major advance in the fight against ependymoma. Research funded by the CERN Foundation and led by scientists from St. Jude Children’s Research Hospital, Memphis, has identified the most common genetic alteration ever reported in the brain tumor ependymoma.

CERN Project IV: Tumor Laboratory Models

— Categories: Press Release     Posted on January 31, 2014

Project IV, led by Dr. Richard Gilbertson, continues their efforts on the creation and development of extremely accurate tumor laboratory models.

CERN Investigators Publish New Paper on the Clinical Course and Progression-Free Survival of Adult Intracranial and Spinal Ependymoma Patients

— Categories: CERN Research Articles     Posted on January 23, 2014

Ependymomas are rare central nervous system tumors. Previous studies that described the clinical course of ependymoma patients were restricted to small sample sizes, often only including patients at a specific institution. The CERN Foundation investigators have established a the world’s largest collection of ependymoma tissues.

CERN Investigators Publish New Paper on the Impact of Recall Period on Primary Brain Tumor Patient’s Self-report of Symptoms

— Categories: CERN Research Articles     Posted on January 6, 2014

Understanding the severity of symptoms that patients with primary brain tumors report is an integral part of patient care and for evaluating treatment benefit in clinical studies.

CERN Foundation At The 2013 Annual Society For Neuro-Oncology Meeting

— Categories: Press Release     Posted on December 16, 2013

The 4th Quadrennial Meeting of the World Federation of Neuro-Oncology was held in conjunction with the 18th Annual Scientific Meeting and Education Day of the Society for Neuro-Oncology on November 21-24, 2013 in San Francisco, CA.

New Paper Analyzes Outcomes in Non-Anaplastic Ependymoma Patients

— Categories: CERN Research Articles     Posted on December 11, 2013

CERN investigators are among the authors of a new paper in the “Journal of Neuro-Oncology” on the observation following gross-total resection for non-anaplastic supratentorial ependymoma.

2013 Annual CERN Meeting

— Categories: Press Release     Posted on November 15, 2013

The CERN Foundation held its 2013 annual meeting on October 25-27 in Palm Beach, Florida.

Participating CERN Doctor, Dr. Riccardo Soffietti, Featured in Article

—   Posted on November 12, 2013

Dr. Riccardo Soffietti, Professor of Neurology/Neuro-Oncology at the University of Torino Medical School in Torino, Italy, was featured in Future Medicine.

Ependymoma Awareness Football Game

— Categories: Press Release     Posted on October 29, 2013

We want to invite anyone affected by ependymoma to come and show your support! Colgate Uplifting Athletes chapter will host an Ependymoma Awareness Game on November 2, 2013 at 1:00 p.m.

England Article Explored Impact of Caring for Children with Brain Tumors on Mothers

— Categories: Ependymoma Research Articles     Posted on September 13, 2013

The diagnosis of a brain tumors, including ependymoma, in children can impact not only the child but the entire family. This study is a qualitative study.

A Molecular Biology and Phase II Trial of Lapatinib in Children With Refractory CNS Malignancies: A Pediatric Brain Tumor Consortium Study

— Categories: Ependymoma Research Articles     Posted on September 11, 2013

The pediatric brain tumor consortium conducted a molecular biology (MB) and phase II study to estimate inhibition of tumor ERBB signaling and sustained responses by lapatinib in children with recurrent CNS malignancies.

CERN Project III: Developmental Therapeutics

— Categories: Press Release     Posted on August 5, 2013

Under the leadership and guidance of Dr. Richard Gilbertson, head of our pediatric research efforts, the Project III: Developmental Therapeutics Team has already generated a vast amount of knowledge that is paving the path for a better treatment and cure for ependymoma.

CERN Investigators Publish Paper On Uncertainty, Mood States, and Symptom Distress in Patients with Primary Brain Tumors

— Categories: CERN Research Articles     Posted on August 1, 2013

Patients with primary brain tumors (PBTs) face uncertainty related to prognosis, symptoms, treatment response, and toxicity. The authors of this report examined the direct/indirect relations among patients’ uncertainty, mood states, and symptoms.

CERN Investigators Publish Paper About Mood Disturbance In Glioma Patients

— Categories: CERN Research Articles     Posted on July 1, 2013

Patients diagnosed with primary brain tumors such as ependymoma and glioma experience psychological distress throughout the illness trajectory. Determining which patient characteristics are associated with more severe mood disturbance throughout the course of the illness can help identify patients at risk and assist in developing targeted interventions based on these factors.

CERN Project II: Tumor Profiling and Pathology

— Categories: Press Release     Posted on May 30, 2013

Dr. Kenneth Aldape, Tumor Profiling and Pathology Project Leader and Dr. Terri Armstrong, co-leader of the CERN Tissue Correlative Study, share what they have accomplished thus far, as well as their hopes for the future of Project II.

2013 Ependymoma Awareness Day Outreach

— Categories: Press Release     Posted on May 6, 2013

In a groundswell of international support, patients, caregivers, professionals and advocates participated in a variety of events marking April 18, 2013, as Ependymoma Awareness Day.

Colgate Uplifting Athletes Host Lift for Life Fundraiser

— Categories: Press Release     Posted on April 29, 2013

Colgate Uplifting Athletes chapter hosted its annual Lift for Life strength and skills competition in Hamilton, NY, on April 17, 2013, to raise funds for the CERN Foundation.

CERN Project I: Clinical Trials

— Categories: Press Release     Posted on March 12, 2013

Dr. Mark Gilbert offered to sit down with us to educate us and provide updates on the progress and efforts of Project I, whose central focus is Clinical Trials.

What We Are Learning and How Are We Advancing?

— Categories: Press Release     Posted on March 11, 2013

As part of our on-going efforts to meet the informational needs and expectations of the patients, caregivers and medical staff who visit our website, we are constantly reaching out to the ependymoma community to find out what more we can do to help educate those individuals affected by ependymoma.

Students From Joplin Host Chili Cook Off

— Categories: Press Release     Posted on March 4, 2013

Three students from Joplin, Elaina Warren, Emily Watson and Michael Gonzalez, wanted to help fellow classmate and friend, Cooper Vocelka, reach his goal to raise money and awareness for brain cancer research.

Study Supports the Use of Adjuvant Radiation Therapy in Management of Pediatric Myxopapillary Ependymoma

— Categories: Ependymoma Research Articles     Posted on February 18, 2013

Historically, myxopapillary ependymoma has been considered a benign neoplasm, often cured with surgical resection. However, this manuscript questions this dogma.

Kayla’s Family and Friends Honor Her

— Categories: Press Release     Posted on February 16, 2013

As Kayla’s 13th birthday approached on January 28, 2013, aunts Debbie and Julie, struggled with how to both celebrate her life and honor her memory. This would be the first birthday that her parents would have to mark without Kayla, who passed away in 2012 after a five-year long battle with ependymoma.

Adjuvant Radiotherapy Delays Recurrence Following Subtotal Resection of Spinal Cord Ependymomas

— Categories: Ependymoma Research Articles     Posted on February 15, 2013

This article represents a secondary analysis of existing published data of the impact of the extent of surgery and adjuvant radiation therapy in adults with spinal cord ependymoma.

CERN Foundation At The 2012 Annual Society For Neuro-Oncology Meeting

— Categories: Press Release     Posted on January 25, 2013

The 17th Annual Scientific Meeting and Education of the Society for Neuro-Oncology was held on November 15-18, 2012, in Washington DC.

Kim Wallgren Featured In Brain Tumour Magazine

— Categories: Press Release     Posted on January 15, 2013

The International Brain Tumour Alliance (IBTA) featured CERN member, Kimberly Wallgren, in a recent issue of the Brain Tumour Magazine.

Increased Expression of Tumor-associated Antigens in Pediatric and Adult Ependymomas: Implication for Vaccine Therapy

— Categories: Ependymoma Research Articles     Posted on January 9, 2013

A group of investigators at the University of Pittsburgh are investigating a peptide-based vaccine therapy targeting EphA2, IL-13Ra2, and Survinin for the treatment of pediatric tumors. This study explored whether these targets are overexrpressed in ependymoma as they are in other gliomas.

New Paper Published by CERN Investigator Addresses Advances In Ependymoma Treatment

— Categories: CERN Research Articles     Posted on December 13, 2012

CERN investigator has published a new paper in the journal ‘Current Treatment Options in Oncology’ on the diagnosis and management of adults and children with ependymoma.

Pediatric Study Group Publish Paper on Lack of Efficacy of Bevacizumab Plus Irinotecan in Pediatric Recurrent Ependymoma

— Categories: Ependymoma Research Articles     Posted on November 14, 2012

This study, conducted by the Pediatric Brain Tumor Consortium, was one component of a wider effort to study the efficacy of bevacizumab in combination with a conventional chemotherapeutic agent (here irinotecan) to treat children with recurrent brain tumors.

Promote Brain Tumor Awareness This October

— Categories: Press Release     Posted on November 9, 2012

Matt Cotcher was diagnosed with a Grade II ependymoma in 2007. The tumor was so developed that Matt required major brain surgery within two weeks.

CERN Doctors Featured In Brain Tumour Magazine

— Categories: Press Release     Posted on October 5, 2012

The International Brain Tumour Alliance (IBTA) featured three CERN doctors in recent issues of the Brain Tumour Magazine.

Fundraiser Held In Grand Isle, LA

— Categories: Press Release     Posted on October 3, 2012

Monique Armand was so touched by Ryan Kennedy’s story and his fight with ependymoma that she decided to create her own fundraiser in Grand Isle, LA.

CERN Investigators Publish Paper About Histological Predictors of Outcome in Ependymoma are Dependent on Anatomic Site Within the CNS

— Categories: CERN Research Articles     Posted on September 23, 2012

Ependymomas may originate in different compartments within the central nervous system. At present, the World Health Organization guidelines recommend a uniform grading scheme be used for ependymomas, independent of the anatomic site of origin.

Retrospective Evaluation of Factors Associated with Prognosis in Children Treated for Ependymoma in Australia

— Categories: Ependymoma Research Articles     Posted on September 5, 2012

A retrospective evaluation of tumor and treatment characteristics of 43 children treated for ependymoma/anaplastic ependymoma treated at New South Wales Cancer Center between 1969 and 2009.

Phase II Study of Pre-irradiation Chemotherapy For Childhood Intracranial Ependymoma

— Categories: Ependymoma Research Articles     Posted on August 21, 2012

Achieving a complete removal of the tumor before using radiation is a key factor in controlling the disease in patients with ependymoma. However, due to the tumor’s nature and location, it is difficult to achieve a complete removal of the tumor during the initial surgery without damaging the cranial nerves and surrounding brain tissue.

CERN Investigators Publish Paper About Predictors of Survival Among Pediatric and Adult Ependymoma Cases

— Categories: CERN Research Articles     Posted on July 28, 2012

CERN investigators have published a paper about predictors of survival among pediatric and adult ependymoma cases: A study using surveillance, epidemiology, and end results data from 1973 to 2007.

Kayla Wenger Featured in Washington Post

— Categories: Press Release     Posted on June 21, 2012

A touching story on Kayla Wenger was featured on the front page of the sports section of the Washington Post.

2012 Ependymoma Awareness Day Outreach

— Categories: Press Release     Posted on May 15, 2012

In a groundswell of international support, patients, caregivers, professionals and advocates participated in a variety of events marking April 18, 2013, as Ependymoma Awareness Day.

CERN Investigators Publish Paper About Gene Expression in Infratentorial Ependymoma

— Categories: CERN Research Articles     Posted on May 12, 2012

In an exciting scientific breakthrough, a team of CERN Foundation researchers, led by Kenneth Aldape, M.D. at MD Anderson Cancer Center, have identified a prognostic gene expression signature in infratentorial ependymoma. These findings have been published in a recent issue of the journal Acta Neuropathologica.

Ryan Kennedy Has Worldwide Impact

— Categories: Press Release     Posted on May 5, 2012

Young Ryan Kennedy has touched the hearts of millions. Diagnosed with ependymoma in 2007, the 9-year-old has fought a valiant fight against the disease enduring seven surgeries, two rounds of radiation and four different kinds of chemotherapy.

CERN Investigators Publish Paper on Ependymoma Outcomes in Cancer Journal

— Categories: CERN Research Articles     Posted on November 15, 2011

A study by the CERN Foundation, led by researchers from the University of Texas Health Science Center and University of Texas M.D. Anderson Cancer Center, has reported on the clinical course and current health status from one of the largest cohorts of adults with ependymoma.

CERN Investigators Publish Paper On Screening To Identify Treatment Leads for Ependymoma

— Categories: CERN Research Articles     Posted on September 13, 2011

In a very exciting breakthrough, a team of CERN Foundation researchers led by Richard Gilberston, Ph.D., M.D., Director of Comprehensive Cancer Center and EVP of St. Jude Children’s Research Hospital and Co-Principal Investigator of the CERN Foundation, have identified new treatment leads for ependymoma.

Two Publications Address Complications of Therapy in Children and Adults

— Categories: Ependymoma Research Articles     Posted on August 10, 2011

Two recent publications address the complications of therapy for people with ependymoma. Researchers explored the impact of location of tumor and radiation on cognitive and psychological outcomes in 23 children with ependymoma.

CERN Investigators Publish Paper on Ependymoma Research Methods

— Categories: CERN Research Articles     Posted on July 13, 2011

A paper pertaining to ependymoma research has been published in the prominent Neuro-Oncology Journal. The paper was co-authored by CERN’s own Drs. Yung and Koul from MD Anderson Cancer Center.

Colgate University and Uplifting Athletes Join Forces with CERN

— Categories: Press Release     Posted on April 10, 2011

The CERN Foundation was selected by the Colgate Chapter of Uplifting Athletes to become the fundraising beneficiary.

Ependymoma Sunrise Session Summary from the Annual SNO Meeting

— Categories: Press Release     Posted on December 15, 2010

Members from the CERN Foundation were able to present an hour long discussion on ependymoma during the Society for Neuro-Oncology 15th Annual Meeting that was held in Montreal, Canada. The speakers included Dr. Terri Armstrong, Dr. Mark Gilbert, Dr. Richard Gilbertson, and Dr. Ken Aldape.

Ependymoma Webinar – NBTS and the CERN Foundation

— Categories: Press Release     Posted on December 5, 2010

The National Brain Tumor Society hosted a webinar including an "Ask the Expert" Session on ependymoma tumors featuring neuro-oncologist and CERN Principal Investigator, Dr. Mark Gilbert.

Symptom Profiles in Adult Patients with Ependymoma: Report from the Ependymoma Outcomes Project

— Categories: CERN Research Articles     Posted on October 13, 2010

The Ependymoma Outcomes (EO) Project is an online survey designed to collect information on the clinical course and current health status of patients with ependymoma. Gathering accurate patient information through this online survey can assist in assessing treatment and health practices for a rare disease.

Adult Ependymal Tumors: Prognosis and The MDACC Experience

— Categories: CERN Research Articles     Posted on August 12, 2010

Ependymomas in adults are rare and often misdiagnosed. There are limited reports which have centralized confirmation of diagnosis and evaluation of prognosis. This study reports on a series of adult patients with confirmed ependymoma treated at M.D. Anderson Cancer Center (MDACC).

CERN Scientists Make Advances in Understanding the Origin of Ependymoma

— Categories: CERN Research Articles     Posted on June 29, 2010

Members of the CERN Foundation, led by scientists from the St. Jude Children’s Research Hospital, have developed a new approach that uses genomic information from different species to understand the biology that drives the formation of these different cancer subtypes.

CERN Foundation Releases Six Videos on Ependymoma

— Categories: Press Release     Posted on June 27, 2010

The CERN Foundation is excited to announce the launch of six new video segments featuring discussion from CERN Members on various issues relating to ependymoma.

2010 Semi-Annual CERN Meeting

— Categories: Press Release     Posted on April 27, 2010

The third Semi-Annual Meeting for the CERN Foundation was held on Wednesday, April 14, 2010 in the Houstonian Hotel in Houston, Texas.

Ependymomas of the Adult: Molecular Biology and Treatment

— Categories: CERN Research Articles     Posted on December 21, 2008

This study reviews state of art and relevant advances in the molecular biology and management of ependymomas of the adult.

Maintenance and Dysfunction Predict Recurrence in Pediatric Ependymoma

— Categories: Ependymoma Research Articles     Posted on October 25, 2008

The enzymatic subunit of telomerase (hTERT) is an important prognostic marker for paediatric ependymoma. Because of the lack of good, representative pre-clinical models for ependymoma, researchers took advantage of their large cohort of ependymoma patients, some with multiple recurrences, to investigate telomere biology in these tumours.

Paediatric ependymomas: should we avoid radiotherapy?

— Categories: Ependymoma Research Articles     Posted on August 22, 2007

Although ependymomas account for only 10% of all childhood brain tumours, this tumour type is particularly common in young children. Because of the potentially severe long-term effects of radiation on the developing central nervous system, over the past 20 years, several studies have focused on the feasibility of using postoperative chemotherapy to delay or even avoiding radiotherapy.

Childhood Intracranial Ependymoma

— Categories: Ependymoma Research Articles     Posted on July 15, 2007

Because few large studies of pediatric ependymoma treatment are available, the authors believed that a retrospective review of treatment outcomes from a single institution would yield potentially valuable information regarding potential prognostic factors.

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