News

CERN Members are a collaborative network of researchers and medical providers who are constantly making new discoveries.

We are committed to being a resource to patients, their family and caregivers and the medical community regarding the latest in ependymoma research, diagnosis and treatment.

2018 CERN Calendar

— Categories: Press Release     Posted on November 22, 2017

To celebrate the heroic efforts from members of our community and to spread awareness about ependymoma, the CERN Foundation created a 2018 calendar featuring inspiration stories, disease information, and CERN programs to inspire, influence and impact others.

Participate in the Ependymoma Outcomes and Risk Study

— Categories: Press Release     Posted on August 23, 2017

If you take part in this study, we will ask you to complete an online survey and submit a saliva sample that will be used for genetic testing to evaluate for risk factors.

2017 Ependymoma Awareness Day Outreach

— Categories: Press Release     Posted on June 20, 2017

In a groundswell of international support, patients, caregivers, professionals and advocates participated in a variety of events marking May 8, 2017, as Ependymoma Awareness Day.

Travis Vs. Ependymoma

— Categories: Press Release     Posted on June 16, 2017

Travis' co-workers help support their friend in his fight against brain cancer.

2017 Ependymoma Awareness Day

— Categories: Press Release     Posted on May 26, 2017

Patients, caregivers and medical professionals from around the world dedicated May 8, 2017, as the sixth annual Ependymoma Awareness Day!

Tyler’s Girlfriend Gives Ultimate Christmas Present

— Categories: Press Release     Posted on March 29, 2017

Tyler's girlfriend, Nicole, holds fundraiser at a local bar to raise funds for the CERN Foundation.

The CERN Foundation Launches New Website

— Categories: Press Release     Posted on January 19, 2017

The CERN Foundation is committed to improving the care and outcome of people with ependymoma. In order to better reach this goal, CERN underwent an intensive website redevelopment process.

CERN Supports Molecular Classification of Ependymoma Panel Discussion

— Categories: Press Release     Posted on January 18, 2017

The 2016 Annual Meeting of the Society for Neuro-Oncology (SNO) was held from November 17-20 in Scottsdale, Arizona. During the meeting on Friday, November 18, the CERN Foundation supported a special evening session.

CERN Foundation Releases People of CERN Series

— Categories: Press Release     Posted on September 26, 2016

This series of short films, produced by the CERN Foundation, aims to humanize the experience of ependymoma by sharing real people's stories and ultimately raising awareness about this rare form of brain and spinal cancer.

Second Edition of Ependymoma Guide Published

— Categories: Press Release     Posted on August 22, 2016

The CERN Foundation completed the second edition of the ependymoma guide as a resource for patients, caregivers and advocates.

Steve Cox Delivers Speech at 2016 Ependymoma Awareness Day

— Categories: Press Release     Posted on June 5, 2016

Steve gave these remarks to patients and caregivers at Georgetown University Hotel and Conference Center during the National Brain Tumor Society’s Head to the Hill event.

2016 Ependymoma Awareness Day Outreach

— Categories: Press Release     Posted on May 24, 2016

In a groundswell of international support, patients, caregivers, professionals and advocates participated in a variety of events marking May 2, 2016, as Ependymoma Awareness Day.

2016 Ependymoma Awareness Day

— Categories: Press Release     Posted on May 3, 2016

Patients, caregivers and medical professionals from around the word dedicated May 2, 2016, as the fifth annual Ependymoma Awareness Day!

CERN Progress Update

— Categories: Press Release     Posted on January 25, 2016

Established in 2007, the CERN Foundation remains focused on improving the lives of children and adults worldwide diagnosed with ependymoma.

CERN Ependymoma Fellowship Recipient Announced

— Categories: Press Release     Posted on January 5, 2016

In late 2015, the CERN Foundation was pleased to announce that Vijay Ramaswamy, MD, PhD, was selected as the inaugural recipient of the CERN Basic Science Ependymoma Research Fellowship.

CERN Foundation At The 2015 Annual Society For Neuro-Oncology Meeting

— Categories: Press Release     Posted on December 14, 2015

The 2015 Annual Meeting of the Society for Neuro-Oncology (SNO) was held from November 19-22, 2015 in San Antonio, TX. Researchers supported by the CERN Foundation were well represented at the meeting.

2015 Annual CERN Meeting

— Categories: Press Release     Posted on December 10, 2015

The CERN Foundation held a productive meeting on November 20, 2015 at the Marriott Riverwalk Hotel in San Antonio, TX. Thirty investigators from across the CERN network participated in a lively yet informal sharing of information on a broad range of ependymoma topics.

Coping With The Holidays

— Categories: Press Release     Posted on December 7, 2015

The holiday season is often time of tradition and renewed hope. If you or a loved one has an ependymoma, or if you have lost someone to the disease, the holidays may be more stressful. This can make it hard to feel connected, unable to meet demands, and out of sync with those around you.

No Shave November

— Categories: Press Release     Posted on December 1, 2015

Hotchkiss Insurance in Houston, TX held a “No Shave” contest and fundraiser for the month of November to support Diane Hotchkiss and raise funds for the CERN Foundation.

A Sweet Gesture Goes A Long Way

— Categories: Press Release     Posted on November 9, 2015

One bake shop owner decided she wanted to help out a family in need and support ependymoma research.

Participate In Our Online Ependymoma Outcomes Surveys

— Categories: Press Release     Posted on September 18, 2015

The Ependymoma Outcomes Projects are online surveys created for both adults (Adult Ependymoma Outcomes or AEO) and children with ependymoma (Pediatric Ependymoma Outcomes or PEO).

2015 Ependymoma Awareness Day Outreach

— Categories: Press Release     Posted on June 6, 2015

In a groundswell of international support, patients, caregivers, professionals and advocates participated in a variety of events marking May 5, 2015, as Ependymoma Awareness Day.

CERN Postdoctoral Basic Science Research Fellowship

— Categories: Press Release     Posted on May 27, 2015

The CERN Foundation is committed to improving the care and outcome of people with ependymoma through community support and research efforts. Through the funding of a postdoctoral fellowship, the CERN Foundation supports training opportunities.

Kimberly Speaks At 2015 Ependymoma Awareness Day

— Categories: Press Release     Posted on May 16, 2015

Kimberly gave these remarks to patients and caregivers at St. Jude Children’s Research Hospital, who gathered to raise awareness of this rare form of brain and spine cancer.

CERN Foundation At The 2014 Annual Society For Neuro-Oncology Meeting

— Categories: Press Release     Posted on December 29, 2014

This is the CERN Foundation podcast for the winter of 2014. In this special podcast, we have highlighted some of the important research presented by CERN-supported investigators at the 19th Annual Scientific Meeting and Education Day of the Society for Neuro-Oncology.

Foresters Families Join Forces to Create Awareness for Rare Brain Tumor

— Categories: Press Release     Posted on May 13, 2014

The Foresters will be holding an Ependymoma Awareness Game on July 25, 2015.

CERN Project V: Awareness, Outreach and Outcomes

— Categories: Press Release     Posted on May 13, 2014

We met with Charles “Chas” Haynes, the Executive Director of the CERN Foundation, and Dr. Terri Armstrong, Editor in Chief of the new CERN Foundation Resource Guide and head of the Ependymoma Outcomes Project, both of whom are responsible for leading Project V.

2014 Ependymoma Awareness Day Outreach

— Categories: Press Release     Posted on May 7, 2014

In an effort to raise awareness of ependymoma, patients, caregivers and medical professionals from around the world dedicated April 10, 2014, as the third annual Ependymoma Awareness Day.

Ask CERN A Question Podcast

— Categories: Press Release     Posted on May 1, 2014

CERN Investigators answered questions submitted by the ependymoma community. This podcast is designed to provide information about ependymoma and the CERN Foundation’s five projects.

Kimberly Wallgren Speaks At 2014 Ependymoma Awareness Day

— Categories: Press Release     Posted on April 21, 2014

Kimberly gave these remarks to CERN researchers from a range of medical institutions across the country during the 2014 Ependymoma Awarness Day butterfly release.

FREE Ependymoma Guide Published

— Categories: Press Release     Posted on April 18, 2014

The CERN Foundation completed an ependymoma guide as a resource for patients, caregivers and advocates.

Ask CERN A Question!

— Categories: Press Release     Posted on April 6, 2014

The CERN Foundation is soliciting your questions for our first ever podcast!

CERN Project IV: Tumor Laboratory Models

— Categories: Press Release     Posted on January 31, 2014

Project IV, led by Dr. Richard Gilbertson, continues their efforts on the creation and development of extremely accurate tumor laboratory models.

CERN Foundation At The 2013 Annual Society For Neuro-Oncology Meeting

— Categories: Press Release     Posted on December 16, 2013

The 4th Quadrennial Meeting of the World Federation of Neuro-Oncology was held in conjunction with the 18th Annual Scientific Meeting and Education Day of the Society for Neuro-Oncology on November 21-24, 2013 in San Francisco, CA.

2013 Annual CERN Meeting

— Categories: Press Release     Posted on November 15, 2013

The CERN Foundation held its 2013 annual meeting on October 25-27 in Palm Beach, Florida.

Ependymoma Awareness Football Game

— Categories: Press Release     Posted on October 29, 2013

We want to invite anyone affected by ependymoma to come and show your support! Colgate Uplifting Athletes chapter will host an Ependymoma Awareness Game on November 2, 2013 at 1:00 p.m.

CERN Project III: Developmental Therapeutics

— Categories: Press Release     Posted on August 5, 2013

Under the leadership and guidance of Dr. Richard Gilbertson, head of our pediatric research efforts, the Project III: Developmental Therapeutics Team has already generated a vast amount of knowledge that is paving the path for a better treatment and cure for ependymoma.

CERN Project II: Tumor Profiling and Pathology

— Categories: Press Release     Posted on May 30, 2013

Dr. Kenneth Aldape, Tumor Profiling and Pathology Project Leader and Dr. Terri Armstrong, co-leader of the CERN Tissue Correlative Study, share what they have accomplished thus far, as well as their hopes for the future of Project II.

2013 Ependymoma Awareness Day Outreach

— Categories: Press Release     Posted on May 6, 2013

In a groundswell of international support, patients, caregivers, professionals and advocates participated in a variety of events marking April 18, 2013, as Ependymoma Awareness Day.

Colgate Uplifting Athletes Host Lift for Life Fundraiser

— Categories: Press Release     Posted on April 29, 2013

Colgate Uplifting Athletes chapter hosted its annual Lift for Life strength and skills competition in Hamilton, NY, on April 17, 2013, to raise funds for the CERN Foundation.

CERN Project I: Clinical Trials

— Categories: Press Release     Posted on March 12, 2013

Dr. Mark Gilbert offered to sit down with us to educate us and provide updates on the progress and efforts of Project I, whose central focus is Clinical Trials.

What We Are Learning and How Are We Advancing?

— Categories: Press Release     Posted on March 11, 2013

As part of our on-going efforts to meet the informational needs and expectations of the patients, caregivers and medical staff who visit our website, we are constantly reaching out to the ependymoma community to find out what more we can do to help educate those individuals affected by ependymoma.

Students From Joplin Host Chili Cook Off

— Categories: Press Release     Posted on March 4, 2013

Three students from Joplin, Elaina Warren, Emily Watson and Michael Gonzalez, wanted to help fellow classmate and friend, Cooper Vocelka, reach his goal to raise money and awareness for brain cancer research.

Kayla’s Family and Friends Honor Her

— Categories: Press Release     Posted on February 16, 2013

As Kayla’s 13th birthday approached on January 28, 2013, aunts Debbie and Julie, struggled with how to both celebrate her life and honor her memory. This would be the first birthday that her parents would have to mark without Kayla, who passed away in 2012 after a five-year long battle with ependymoma.

CERN Foundation At The 2012 Annual Society For Neuro-Oncology Meeting

— Categories: Press Release     Posted on January 25, 2013

The 17th Annual Scientific Meeting and Education of the Society for Neuro-Oncology was held on November 15-18, 2012, in Washington DC.

Kim Wallgren Featured In Brain Tumour Magazine

— Categories: Press Release     Posted on January 15, 2013

The International Brain Tumour Alliance (IBTA) featured CERN member, Kimberly Wallgren, in a recent issue of the Brain Tumour Magazine.

Promote Brain Tumor Awareness This October

— Categories: Press Release     Posted on November 9, 2012

Matt Cotcher was diagnosed with a Grade II ependymoma in 2007. The tumor was so developed that Matt required major brain surgery within two weeks.

CERN Doctors Featured In Brain Tumour Magazine

— Categories: Press Release     Posted on October 5, 2012

The International Brain Tumour Alliance (IBTA) featured three CERN doctors in recent issues of the Brain Tumour Magazine.

Fundraiser Held In Grand Isle, LA

— Categories: Press Release     Posted on October 3, 2012

Monique Armand was so touched by Ryan Kennedy’s story and his fight with ependymoma that she decided to create her own fundraiser in Grand Isle, LA.

Kayla Wenger Featured in Washington Post

— Categories: Press Release     Posted on June 21, 2012

A touching story on Kayla Wenger was featured on the front page of the sports section of the Washington Post.

2012 Ependymoma Awareness Day Outreach

— Categories: Press Release     Posted on May 15, 2012

In a groundswell of international support, patients, caregivers, professionals and advocates participated in a variety of events marking April 18, 2013, as Ependymoma Awareness Day.

Ryan Kennedy Has Worldwide Impact

— Categories: Press Release     Posted on May 5, 2012

Young Ryan Kennedy has touched the hearts of millions. Diagnosed with ependymoma in 2007, the 9-year-old has fought a valiant fight against the disease enduring seven surgeries, two rounds of radiation and four different kinds of chemotherapy.

Colgate University and Uplifting Athletes Join Forces with CERN

— Categories: Press Release     Posted on April 10, 2011

The CERN Foundation was selected by the Colgate Chapter of Uplifting Athletes to become the fundraising beneficiary.

Ependymoma Sunrise Session Summary from the Annual SNO Meeting

— Categories: Press Release     Posted on December 15, 2010

Members from the CERN Foundation were able to present an hour long discussion on ependymoma during the Society for Neuro-Oncology 15th Annual Meeting that was held in Montreal, Canada. The speakers included Dr. Terri Armstrong, Dr. Mark Gilbert, Dr. Richard Gilbertson, and Dr. Ken Aldape.

Ependymoma Webinar – NBTS and the CERN Foundation

— Categories: Press Release     Posted on December 5, 2010

The National Brain Tumor Society hosted a webinar including an "Ask the Expert" Session on ependymoma tumors featuring neuro-oncologist and CERN Principal Investigator, Dr. Mark Gilbert.

CERN Foundation Releases Six Videos on Ependymoma

— Categories: Press Release     Posted on June 27, 2010

The CERN Foundation is excited to announce the launch of six new video segments featuring discussion from CERN Members on various issues relating to ependymoma.

2010 Semi-Annual CERN Meeting

— Categories: Press Release     Posted on April 27, 2010

The third Semi-Annual Meeting for the CERN Foundation was held on Wednesday, April 14, 2010 in the Houstonian Hotel in Houston, Texas.

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