This project intends to answer the one question that plagues most all patients: Why did this happen to me? CERN is expanding the work of our successful Ependymoma Outcomes Surveys to improve our understanding of risk factors associated with the occurrence of ependymoma. Sign up today!
Connecting you with other ependymoma patients and caregivers.
Connecting you with neuro-oncologists who specialize in treating ependymoma.
Where to Start
If you or a loved one has just been diagnosed, we are here to help you get the facts on ependymoma. Learn More
Ways you can help care for yourself or a loved one during and after ependymoma treatment. Learn More
Learn how ependymoma is diagnosed, what it looks like and what to do after being diagnosed. Learn More
Find resources from other patients and caregivers and experts in the medical community. Learn More
To make the best ependymoma treatment decisions, you need to understand all of your options. Learn More
Ways you can help us expand our understanding of ependymoma, raise additional funding, or create more awareness of ependymoma. Learn More
“The CERN Foundation provided me with a wealth of knowledge. There is so much information; between research, studies, and families’ stories. I never had to feel alone. I took refuge in the information provided in those early days of my son’s diagnosis. It was scary, but with knowledge, I felt I had taken some of the power back. I wasn’t quite as helpless.”
CERN Foundation Releases People of CERN Series
This series of short films, produced by the CERN Foundation, aims to humanize the experience of ependymoma by sharing real people's stories and ultimately raising awareness about this rare form of brain and spinal cancer.
Case-based Review: Ependymomas in Adults
View a case-based review of a 46-year-old woman with a spinal cord ependymoma. Top neuro-oncologists discuss the current classification and treatment for ependymoma.
Radiation Therapy for Young Children with Ependymoma
Santhosh Upadhyaya, MD, Neuro-oncologist at St. Jude Children’s Research Hospital discusses radiation therapy for young children under the age of 3 who have ependymoma.
Sarah Delivers Speech at 2018 Ependymoma Awareness Day
Sarah gave these remarks to patients and caregivers at the Hogan Lovells Law Firm during the National Brain Tumor Society’s Head to the Hill event.