Risk Project

This project intends to answer the one question that plagues most all patients: Why did this happen to me? CERN is expanding the work of our successful Ependymoma Outcomes Surveys to improve our understanding of risk factors associated with the occurrence of ependymoma. Sign up today!

Stories

Connecting you with other ependymoma patients and caregivers.

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Referrals

Connecting you with neuro-oncologists who specialize in treating ependymoma.

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Where to Start

  • Ependymoma Basics

    If you or a loved one has just been diagnosed, we are here to help you get the facts on ependymoma. Learn More

  • Support

    Ways you can help care for yourself or a loved one during and after ependymoma treatment. Learn More

  • Diagnosis

    Learn how ependymoma is diagnosed, what it looks like and what to do after being diagnosed. Learn More

  • Resources

    Find resources from other patients and caregivers and experts in the medical community. Learn More

  • Treatment

    To make the best ependymoma treatment decisions, you need to understand all of your options. Learn More

  • Get Involved

    Ways you can help us expand our understanding of ependymoma, raise additional funding, or create more awareness of ependymoma. Learn More

“The CERN Foundation provided me with a wealth of knowledge. There is so much information; between research, studies, and families’ stories. I never had to feel alone. I took refuge in the information provided in those early days of my son’s diagnosis. It was scary, but with knowledge, I felt I had taken some of the power back. I wasn’t quite as helpless.”


Amy F.

Amy F.

CERN Headlines

CERN Foundation Releases People of CERN Series

CERN Foundation Releases People of CERN Series

This series of short films, produced by the CERN Foundation, aims to humanize the experience of ependymoma by sharing real people's stories and ultimately raising awareness about this rare form of brain and spinal cancer.

  • Dec5

    Recent Advances in the Classification and Treatment of Ependymomas
    Ependymomas are rare neuroepithelial primary central nervous system (CNS) tumors that affect children and adult patients in which they make up 1.8% of all primary CNS tumors. In this article, authors review the classification, pathology and current clinical approaches.

  • Nov22

    2018 CERN Calendar
    To celebrate the heroic efforts from members of our community and to spread awareness about ependymoma, the CERN Foundation created a 2018 calendar featuring inspiration stories, disease information, and CERN programs to inspire, influence and impact others.

  • Aug23

    Participate in the Ependymoma Outcomes and Risk Study
    If you take part in this study, we will ask you to complete an online survey and submit a saliva sample that will be used for genetic testing to evaluate for risk factors.

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