The Risk Project intends to answer the one question that plagues most all patients: Why did this happen to me? CERN is expanding the work of our successful Ependymoma Outcomes Surveys to improve our understanding of risk factors associated with the occurrence of ependymoma. Sign up today!
Connecting you with other ependymoma patients and caregivers.
Connecting you with neuro-oncologists who specialize in treating ependymoma.
Where to Start
If you or a loved one has just been diagnosed, we are here to help you get the facts on ependymoma. Learn More
Ways you can help care for yourself or a loved one during and after ependymoma treatment. Learn More
Learn how ependymoma is diagnosed, what it looks like and what to do after being diagnosed. Learn More
Find resources from other patients and caregivers and experts in the medical community. Learn More
To make the best ependymoma treatment decisions, you need to understand all of your options. Learn More
Ways you can help us expand our understanding of ependymoma, raise additional funding, or create more awareness of ependymoma. Learn More
“When I was first diagnosed six years ago - my life was turned upside down. I contacted the CERN Foundation and they were so kind and genuinely interested in providing information and direction. With their help, I was able to find a medical center experienced in treating ependymoma.”
CERN Foundation Releases Ependymoma Community Blog Series
This series of blog articles is written by members of the ependymoma community. Some are ependymoma survivors and others are caregivers. They share their advice to help others with ependymoma cope with their illness.
Coronavirus Disease Impact and Resources
View some helpful links to important information on ways to stay up to date on the coronavirus (COVID-19) on helpful resources as well as an update on Ependymoma Awareness Day.
Guidelines for the Diagnosis and Treatment of Ependymal Tumors
The European Association of Neuro-Oncology (EANO) have published guidelines for the diagnosis and treatment of ependymoma tumors.
Ependymoma Awareness Day is May 3, 2020
Join the CERN Foundation in Washington, DC, to raise awareness of ependymoma! On May 3, 2020, CERN will mark the ninth annual Ependymoma Awareness Day with a butterfly release to honor loved ones, caregivers and to increase public recognition of this rare tumor.