Risk Project

The Risk Project intends to answer the one question that plagues most all patients: Why did this happen to me? CERN is expanding the work of our successful Ependymoma Outcomes Surveys to improve our understanding of risk factors associated with the occurrence of ependymoma. Sign up today!


Connecting you with other ependymoma patients and caregivers.

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Connecting you with neuro-oncologists who specialize in treating ependymoma.

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Where to Start

  • Ependymoma Basics

    If you or a loved one has just been diagnosed, we are here to help you get the facts on ependymoma. Learn More

  • Support

    Ways you can help care for yourself or a loved one during and after ependymoma treatment. Learn More

  • Diagnosis

    Learn how ependymoma is diagnosed, what it looks like and what to do after being diagnosed. Learn More

  • Resources

    Find resources from other patients and caregivers and experts in the medical community. Learn More

  • Treatment

    To make the best ependymoma treatment decisions, you need to understand all of your options. Learn More

  • Get Involved

    Ways you can help us expand our understanding of ependymoma, raise additional funding, or create more awareness of ependymoma. Learn More

“The CERN Foundation provided me with a wealth of knowledge. There is so much information; between research, studies, and families’ stories. I never had to feel alone. I took refuge in the information provided in those early days of my son’s diagnosis. It was scary, but with knowledge, I felt I had taken some of the power back. I wasn’t quite as helpless.”

Amy F.

Amy F.

CERN Headlines

CERN Foundation Releases Ependymoma Community Blog Series

CERN Foundation Releases Ependymoma Community Blog Series

This series of blog articles is written by members of the ependymoma community. Some are ependymoma survivors and others are caregivers. They share their advice to help others with ependymoma cope with their illness.

  • Sep17

    CERN Foundation to Become A Designated Program of NBTS
    National Brain Tumor Society (NBTS) and the CERN Foundation Announce Official Plans for CERN to Become a Designated Program of the NBTS

  • Aug26

    c-IMPACT NOW update 7: Advancing the Molecular Classification of Ependymal Tumors
    New scientific information recently published will influence the molecular classification of ependymoma tumors in the near future. This information builds upon our current understanding of ependymoma pathology and previous publications on molecular classification. Much of this data was built upon the foundational work that CERN supported.

  • Jul24

    Metabolic Regulation of the Epigenome Drives Lethal Infantile Ependymoma
    Ependymomas are glial tumors that occur throughout the central nervous system. Of the nine distinct molecular types of ependymoma, posterior fossa A (PFA) ependymomas, found in the hindbrain of infants and young children, are the most prevalent type. In this publication, the investigators have identified a metabolic-epigenomic link in PFA ependymomas that informs the phenotype of PFA ependymoma and possible development of novel therapeutic strategies for these lethal cancers.

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