Ependymoma Awareness Video
Ependymoma Awareness Day (EAD) was established in 2012 by the CERN Foundation as part of a global effort to shine a light on this poorly understood disease. Our goal with Ependymoma Awareness Day is to increase public and professional recognition of this rare tumor, shine a light on the unique challenges faced by the ependymoma community, and express the urgent need to develop better-targeted treatments and clinical trials to improve quality of life and ultimately find a cure for those living with this disease.
“Thank you again for your support and providing this service to those who are dealing with conditions like ependymoma. It gave me a great deal of comfort knowing that if needed we had resources available to us." RA
Referrals
Connecting you with neuro-oncologists who specialize in treating ependymoma.
Where to Start
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Ependymoma Basics
If you or a loved one has just been diagnosed, we are here to help you get the facts on ependymoma. Learn More
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Support
Ways you can help care for yourself or a loved one during and after ependymoma treatment. Learn More
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Diagnosis
Learn how ependymoma is diagnosed, what it looks like and what to do after being diagnosed. Learn More
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Resources
Find resources from other patients and caregivers and experts in the medical community. Learn More
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Treatment
To make the best ependymoma treatment decisions, you need to understand all of your options. Learn More
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Get Involved
Ways you can help us expand our understanding of ependymoma, raise additional funding, or create more awareness of ependymoma. Learn More
“The CERN Foundation provided me with a wealth of knowledge. There is so much information; between research, studies, and families’ stories. I never had to feel alone. I took refuge in the information provided in those early days of my son’s diagnosis. It was scary, but with knowledge, I felt I had taken some of the power back. I wasn’t quite as helpless.”
CERN Headlines
CERN Foundation Releases Ependymoma Community Blog Series
Featuring a collection of articles written by members of the ependymoma community. Some authors are ependymoma survivors and others are care partners. They share their advice to help others with ependymoma cope with their illness.
- Sep18
Samreen Shaikh receives the 2024 CERN and Robert Connor Dawes Scientific Fellowship Award with the National Brain Tumor Society
This fellowship award is a part of an ongoing collaboration between the CERN Foundation, National Brain Tumor Society, and the Robert Connor Dawes Foundation, and was created with the goal of advancing pediatric ependymoma scientific research through collaborative partnerships, internationally. - Jun14
Ependymoma Guide - Third Edition Released
The CERN Foundation, a program of the National Brain Tumor Society, recently released the third edition of the Ependymoma Guide. The goal of this guide is to provide basic facts about ependymoma to increase education and awareness about the rare disease. - May31
2024 Ependymoma Awareness Day Outreach Report
In a groundswell of international support, patients, care partners, medical professionals, and advocates participated in a variety of events marking May 5, 2024, as Ependymoma Awareness Day.