Risk Project

The Risk Project intends to answer the one question that plagues most all patients: Why did this happen to me? CERN is expanding the work of our successful Ependymoma Outcomes Surveys to improve our understanding of risk factors associated with the occurrence of ependymoma. Sign up today!

Stories

Connecting you with other ependymoma patients and caregivers.

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Referrals

Connecting you with neuro-oncologists who specialize in treating ependymoma.

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Where to Start

  • Ependymoma Basics

    If you or a loved one has just been diagnosed, we are here to help you get the facts on ependymoma. Learn More

  • Support

    Ways you can help care for yourself or a loved one during and after ependymoma treatment. Learn More

  • Diagnosis

    Learn how ependymoma is diagnosed, what it looks like and what to do after being diagnosed. Learn More

  • Resources

    Find resources from other patients and caregivers and experts in the medical community. Learn More

  • Treatment

    To make the best ependymoma treatment decisions, you need to understand all of your options. Learn More

  • Get Involved

    Ways you can help us expand our understanding of ependymoma, raise additional funding, or create more awareness of ependymoma. Learn More

“When I was first diagnosed six years ago - my life was turned upside down. I contacted the CERN Foundation and they were so kind and genuinely interested in providing information and direction. With their help, I was able to find a medical center experienced in treating ependymoma.”


Patrick R.

Patrick R.

CERN Headlines

CERN Foundation Releases People of CERN Series

CERN Foundation Releases People of CERN Series

This series of short films, produced by the CERN Foundation, aims to humanize the experience of ependymoma by sharing real people's stories and ultimately raising awareness about this rare form of brain and spinal cancer.

  • Mar22

    Ependymoma Meeting
    The Fourth Biennial Ependymoma Consensus was held at NIH, February 20 to 22, 2019. Neuro-oncology experts worldwide met to advance their knowledge and collaborate to find better treatments for people with ependymoma.

  • May29

    Ian Delivers Speech at Ependymoma Awareness Day
    Ependymoma survivor, Ian, gave these remarks to patients and caregivers at the Bracewell law firm during the National Brain Tumor Society’s Head to the Hill event.

  • May29

    Neuro-oncologist and Ependymoma Survivor Shares Her Story
    Dr. Zsila Sadighi shared her experiences as an ependymoma survivor who later became a pediatric neuro-oncologist at the 2019 Ependymoma Awareness Day butterfly release during the National Brain Tumor Society’s Head to the Hill event.

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