Ependymoma Awareness Video
The Ependymoma Awareness Day virtual program includes educational and awareness content from CERN Advisors and Members, historical clips from previous EAD events, key issues from the ependymoma community, and concludes with a butterfly release.
“I watched and thought - if only THIS is what people would see when they Google 'ependymoma'!!! Such great information!” Beth
Connecting you with other ependymoma patients and caregivers.
Connecting you with neuro-oncologists who specialize in treating ependymoma.
Where to Start
If you or a loved one has just been diagnosed, we are here to help you get the facts on ependymoma. Learn More
Ways you can help care for yourself or a loved one during and after ependymoma treatment. Learn More
Learn how ependymoma is diagnosed, what it looks like and what to do after being diagnosed. Learn More
Find resources from other patients and caregivers and experts in the medical community. Learn More
To make the best ependymoma treatment decisions, you need to understand all of your options. Learn More
Ways you can help us expand our understanding of ependymoma, raise additional funding, or create more awareness of ependymoma. Learn More
“The CERN Foundation provided me with a wealth of knowledge. There is so much information; between research, studies, and families’ stories. I never had to feel alone. I took refuge in the information provided in those early days of my son’s diagnosis. It was scary, but with knowledge, I felt I had taken some of the power back. I wasn’t quite as helpless.”
CERN Foundation Releases Ependymoma Community Blog Series
Featuring a collection of articles written by members of the ependymoma community. Some authors are ependymoma survivors and others are care partners. They share their advice to help others with ependymoma cope with their illness.
“ReConnected” authors launch YouTube Channel to raise awareness and share stories of rare disease survivorship
Ependymoma spinal cord tumor survivors are using video interviews to raise awareness and provide connection for a rare disease community.
Ependymoma Essentials - Educational Video Series for Ependymoma Patients and Care Partners
A community driven initiative designed to create educational videos that communicate reliable and trustworthy information in collaboration with leaders in the ependymoma community.
Tips From the Ependymoma Community for Children and Adults Starting Radiation Treatment
We asked the ependymoma community to share useful tips for people starting radiation treatment and received good feedback from survivors, parents, and care partners.