Ependymoma Awareness Video

The Ependymoma Awareness Day virtual program includes educational and awareness content from CERN Advisors and Members, historical clips from previous EAD events, key issues from the ependymoma community, and concludes with a butterfly release. 

“I watched and thought - if only THIS is what people would see when they Google 'ependymoma'!!! Such great information!” Beth

Stories

Connecting you with other ependymoma patients and caregivers.

Read On

Referrals

Connecting you with neuro-oncologists who specialize in treating ependymoma.

Find a CERN Center

Where to Start

  • Ependymoma Basics

    If you or a loved one has just been diagnosed, we are here to help you get the facts on ependymoma. Learn More

  • Support

    Ways you can help care for yourself or a loved one during and after ependymoma treatment. Learn More

  • Diagnosis

    Learn how ependymoma is diagnosed, what it looks like and what to do after being diagnosed. Learn More

  • Resources

    Find resources from other patients and caregivers and experts in the medical community. Learn More

  • Treatment

    To make the best ependymoma treatment decisions, you need to understand all of your options. Learn More

  • Get Involved

    Ways you can help us expand our understanding of ependymoma, raise additional funding, or create more awareness of ependymoma. Learn More

“When I was first diagnosed six years ago - my life was turned upside down. I contacted the CERN Foundation and they were so kind and genuinely interested in providing information and direction. With their help, I was able to find a medical center experienced in treating ependymoma.”


Patrick R.

Patrick R.

CERN Headlines

CERN Foundation Releases Ependymoma Community Blog Series

CERN Foundation Releases Ependymoma Community Blog Series

This series of blog articles is written by members of the ependymoma community. Some are ependymoma survivors and others are caregivers. They share their advice to help others with ependymoma cope with their illness.

  • Jun16

    Ependymoma Key Issues

  • May21

    Awareness Starts With You
    Ependymoma survivor, Jennifer, shares the importance of awareness and how internal awareness is step one. Jennifer writes “Awareness began for me when I began to worry about what felt like a little fire inside my left temple.” Read her second Ependymoma Community Blog entry titled 'Awareness Starts with You' to learn more about her personal experience with awareness.

  • May20

    2021 Ependymoma Awareness Day Outreach Report
    In a groundswell of international support, patients, care partners, medical professionals and advocates participated in a variety of events marking May 10, 2021 as Ependymoma Awareness Day.

View All News >

Stay Informed with the CERN Newsletter

The CERN Foundation is committed to informing you with the latest ependymoma news and research. Join our mailing list for monthly updates. View all newsletters