Ependymoma Awareness Video
The Ependymoma Awareness Day virtual program includes educational and awareness content from CERN Advisors and Members, historical clips from previous EAD events, key issues from the ependymoma community, and concludes with a butterfly release.
“I watched and thought - if only THIS is what people would see when they Google 'ependymoma'!!! Such great information!” Beth
Referrals
Connecting you with neuro-oncologists who specialize in treating ependymoma.
Where to Start
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Ependymoma Basics
If you or a loved one has just been diagnosed, we are here to help you get the facts on ependymoma. Learn More
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Support
Ways you can help care for yourself or a loved one during and after ependymoma treatment. Learn More
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Diagnosis
Learn how ependymoma is diagnosed, what it looks like and what to do after being diagnosed. Learn More
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Resources
Find resources from other patients and caregivers and experts in the medical community. Learn More
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Treatment
To make the best ependymoma treatment decisions, you need to understand all of your options. Learn More
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Get Involved
Ways you can help us expand our understanding of ependymoma, raise additional funding, or create more awareness of ependymoma. Learn More
“When I was first diagnosed six years ago - my life was turned upside down. I contacted the CERN Foundation and they were so kind and genuinely interested in providing information and direction. With their help, I was able to find a medical center experienced in treating ependymoma.”
CERN Headlines
CERN Foundation Releases Ependymoma Community Blog Series
Featuring a collection of articles written by members of the ependymoma community. Some authors are ependymoma survivors and others are care partners. They share their advice to help others with ependymoma cope with their illness.
- Dec20
Ependymoma Essentials - Educational Video Series for Ependymoma Patients and Care Partners
A community driven initiative designed to create educational videos that communicate reliable and trustworthy information in collaboration with leaders in the ependymoma community. - Oct21
Tips From the Ependymoma Community for Children and Adults Starting Radiation Treatment
We asked the ependymoma community to share useful tips for people starting radiation treatment and received good feedback from survivors, parents, and care partners. - Aug18
CERN Seed Grant Launches New $3M Ependymoma Research Project
Discoveries from the 2020 CERN Robert Connor Dawes Pediatric Fellowship, supported by the National Brain Tumor Society, to Dr. Chan Chung in Dr. Sriram Venneti’s laboratory at the University of Michigan, were instrumental in helping to win an esteemed $3 million R01 grant from the National Cancer Institute (NCI).