Ependymoma Awareness Video
The Ependymoma Awareness Day virtual program includes educational and awareness content from CERN Advisors and Members, historical clips from previous EAD events, key issues from the ependymoma community, and concludes with a butterfly release.
“I watched and thought - if only THIS is what people would see when they Google 'ependymoma'!!! Such great information!” Beth
Connecting you with other ependymoma patients and caregivers.
Connecting you with neuro-oncologists who specialize in treating ependymoma.
Where to Start
If you or a loved one has just been diagnosed, we are here to help you get the facts on ependymoma. Learn More
Ways you can help care for yourself or a loved one during and after ependymoma treatment. Learn More
Learn how ependymoma is diagnosed, what it looks like and what to do after being diagnosed. Learn More
Find resources from other patients and caregivers and experts in the medical community. Learn More
To make the best ependymoma treatment decisions, you need to understand all of your options. Learn More
Ways you can help us expand our understanding of ependymoma, raise additional funding, or create more awareness of ependymoma. Learn More
“The CERN Foundation provided me with a wealth of knowledge. There is so much information; between research, studies, and families’ stories. I never had to feel alone. I took refuge in the information provided in those early days of my son’s diagnosis. It was scary, but with knowledge, I felt I had taken some of the power back. I wasn’t quite as helpless.”
CERN Foundation Releases Ependymoma Community Blog Series
Featuring a collection of articles written by members of the ependymoma community. Some authors are ependymoma survivors and others are care partners. They share their advice to help others with ependymoma cope with their illness.
CERN Seed Grant Launches New $3M Ependymoma Research Project
Discoveries from the 2020 CERN Robert Connor Dawes Pediatric Fellowship, supported by the National Brain Tumor Society, to Dr. Chan Chung in Dr. Sriram Venneti’s laboratory at the University of Michigan, were instrumental in helping to win an esteemed $3 million R01 grant from the National Cancer Institute (NCI).
NCI-CONNECT leads Survivorship Care in Neuro-Oncology Workshop in partnership with advocacy organizations including the CERN Foundation and National Brain Tumor Society
The CERN Foundation a program of the National Brain Tumor Society, proudly endorses the Proceedings of the Survivorship Care in Neuro-Oncology Workshop Sponsored by the Comprehensive Oncology Networking Evaluating Rare CNS Tumors (NCI-CONNECT), which summarizes a two-day virtual workshop held virtually on June 20 and 21, 2021, addressing the advancement of survivorship care for people living with primary central nervous system cancers.
Intimacy and a Brain or Spinal Cord Tumor Diagnosis
A rare disease diagnosis is isolating and impacts so many areas of life including the taboo subject of self-image and sexuality. After all, there may be no other factor as important in the ‘quality of life’ discussion as intimacy.