Ependymoma Awareness Video

The Ependymoma Awareness Day virtual program includes educational and awareness content from CERN Advisors and Members, historical clips from previous EAD events, key issues from the ependymoma community, and concludes with a butterfly release. 

“I watched and thought - if only THIS is what people would see when they Google 'ependymoma'!!! Such great information!” Beth

Stories

Connecting you with other ependymoma patients and caregivers.

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Referrals

Connecting you with neuro-oncologists who specialize in treating ependymoma.

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Where to Start

  • Ependymoma Basics

    If you or a loved one has just been diagnosed, we are here to help you get the facts on ependymoma. Learn More

  • Support

    Ways you can help care for yourself or a loved one during and after ependymoma treatment. Learn More

  • Diagnosis

    Learn how ependymoma is diagnosed, what it looks like and what to do after being diagnosed. Learn More

  • Resources

    Find resources from other patients and caregivers and experts in the medical community. Learn More

  • Treatment

    To make the best ependymoma treatment decisions, you need to understand all of your options. Learn More

  • Get Involved

    Ways you can help us expand our understanding of ependymoma, raise additional funding, or create more awareness of ependymoma. Learn More

“The CERN Foundation provided me with a wealth of knowledge. There is so much information; between research, studies, and families’ stories. I never had to feel alone. I took refuge in the information provided in those early days of my son’s diagnosis. It was scary, but with knowledge, I felt I had taken some of the power back. I wasn’t quite as helpless.”


Amy F.

Amy F.

CERN Headlines

CERN Foundation Releases Ependymoma Community Blog Series

CERN Foundation Releases Ependymoma Community Blog Series

Featuring a collection of articles written by members of the ependymoma community. Some authors are ependymoma survivors and others are care partners. They share their advice to help others with ependymoma cope with their illness.

  • Feb18

    Saying Goodbye to the Patient Who Inspired the CERN Foundation
    While it was never his intention or desire, Dallas Mathile’s diagnosis with an anaplastic ependymoma in 2002 would spark the creation of a unique research and advocacy organization that today serves as a collective voice, a safe and caring place, and an innovator, all for the ependymoma community.

  • Jan25

    Congratulations to Kendra Maass, the 2022 CERN and Robert Connor Dawes Scientific Fellowship Recipient
    Kendra Maass, from the Hopp Children's Tumor Center Heidelberg (KiTZ) and German Cancer Research Center (DFKZ), is the recipient of the 2022 CERN and Robert Connor Dawes Scientific Fellowship awarded by the National Brain Tumor Society. Research efforts will focus on unraveling the mechanistic dependencies of ependymoma tumor cells on extracellular vesicle pathways.

  • Jan12

    Managing a Rare Disease During the Covid-19 Pandemic
    Hearing the phrase, “you have cancer” is terrifying. Learning that you have a rare type of cancer makes it even more daunting. Doing those things while a global pandemic is occurring complicates it all, which only adds to the pressure of the moment.

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