The CERN Foundation is a collaborative network with a commitment to connecting patients and caregivers – in addition to medical providers – who deal with ependymoma.

This section of our site is dedicated to helping anyone affected by ependymoma connect with the foundation through patient stories and, perhaps most importantly, each other. And by creating more awareness of ependymoma, our hope is to increase public recognition of this rare tumor and the need for clinical studies to improve early diagnosis, standardize treatment and improve the health status of those living with this disease.


View All Inspiration Stories

Inspiration Stories

Enough is Enough

Gabrielle learned how to live in the here and now.

Learn More

Gaining a New Perspective

Kristina overcomes ependymoma treatment and gains a new perspective on life.

Learn More

Determined to Defeat Ependymoma

Steven shares how he continues to perservere after having an ependymoma in his spinal cord.

Learn More

I’m Here!

Shannon continues to overcome limitations every day from her anaplastic ependymoma.

Learn More

Share Your Story

Help others who are going through similar experiences by sharing your ependymoma journey.


Ependymoma Awareness Day 2018

To commemorate the seventh Ependymoma Awareness Day, butterflies were released in Washington, DC by the ependymoma and brain tumor community on May 6, 2018.

Learn More

Ependymoma Awareness Day 2017

The ependymoma community dedicated May 8, 2017 as the sixth annual Ependymoma Awareness Day and a butterfly release was held in Arlington, Virginia to commemorate the day.

Learn More

Ependymoma Awareness Day 2016

For the fourth annual Awareness Day, a butterfly release was held on Monday, May 2, 2016 in Washington, DC during the National Brain Tumor Society's Head to the Hill event.

Learn More

Ependymoma Awareness Day 2015

A butterfly release was held at St. Jude Children’s Research Hospital in Memphis, Tennessee, on May 5, 2015 to commemorate the fourth annual Ependymoma Awareness Day.

Learn More

Ependymoma Awareness Day 2014

In an effort to raise awareness of ependymoma, patients, caregivers and medical professionals from around the world dedicated April 10, 2014 as the third annual Awareness Day.

Learn More

Ependymoma Awareness Day 2013

Hundreds of brightly colored butterflies covered the skies over St. Jude Children’s Research Hospital as they were released by patients and CERN investigators on April 18, 2013.

Learn More

Ependymoma Awareness Day 2012

CERN commemorated Awareness Day with a mass butterfly release that took place at the semi-annual CERN investigator meeting on April 19, 2012.

Learn More

Stay Informed with the CERN Newsletter

The CERN Foundation is committed to informing you with the latest ependymoma news and research. Join our mailing list for monthly updates.