Ependymoma Awareness Day 2020

Ependymoma Awareness Day 2020

Now in its ninth year, this campaign is an international effort from the CERN Foundation in partnership with medical professionals, patients and caregivers from around the world. Together, we have designated May 3, 2020, as Ependymoma Awareness Day!

Due to the coronavirus, our plans to host an Ependymoma Awareness Day event has shifted from a live event to a virtual event. For those of you who have already made travel plans, please cancel those directly. Over the next few weeks, we will be releasing a plan with further details on how to get involved from your home. You can trust we are working hard to unite the ependymoma community and spread awareness around the world about this disease.

The CERN Foundation is thrilled to announce that this year’s Ependymoma Awareness Day will be held during the National Brain Tumor Society’s Head to the Hill event in Washington, DC!

The CERN Foundation is honored to be a part of this three-day event, held on May 3-5, at which brain tumor advocates from across the country descend on our nation’s capital to share their stories and advocate for public policy issues that are important to the brain tumor community.

CERN encourages all those who support the ependymoma cause to participate in the 2020 Head to the Hill event! Together we can drive the agenda forward for better treatments, stronger research, and ultimately a cure.

Register to participate in Head to the Hill

Butterfly Release

The CERN Foundation will commemorate Ependymoma Awareness Day with a mass butterfly release that will take place on May 3 during the 2020 Head to the Hill activities. The butterfly release will be video-taped and posted on the internet so that supporters unable to attend can participate and share in this moving occasion.  View the 2019 Ependymoma Awareness Day butterfly release.

RSVP to the butterfly release

Show Your Support!

The CERN Foundation is currently engaged in a range of community outreach programs and support efforts designed to have a positive impact on the lives of children and adults living with ependymoma, as well as their families and caregivers. Please consider supporting our efforts by making a donation or creating your own online fundraising campaign.

Support CERN

Join our CERN Team!

Join other ependymoma families and participate in the Race for Hope in Washington, DC on Sunday, May 3, 2020 on Ependymoma Awareness Day! 

By joining the CERN Foundation's team, you are supporting the Ependymoma Fund. The CERN Foundation and the National Brain Tumor Society have joined forces to help people with ependymoma and advance ependymoma research toward the development of new and better treatments through the creation of the Ependymoma Fund for Research and Education.

You can also ask your family and friends to support you during this event on your personal race page or you can reach even more people by creating a fundraiser on Facebook.

Register to join the CERN team

Create Awareness Where You Live!

On a local level, we urge you to participate in an ependymoma awareness activity, helping to create a greater understanding of the disease.

You could support awareness in the following ways:

  • Raise funds to help with research!
  • Create your own Awareness Day event!
  • Share information on ependymoma with another person who has never heard of it!
  • Tell your doctor and healthcare providers about Ependymoma Awareness Day!
  • Document your awareness efforts on your Facebook page, Twitter account or blog and use the hashtag #CERNbutterfly!
  • Educate colleagues, co-workers, school groups and congregations!
  • Order and wear an ependymoma awareness lapel pin or CERN hat!
  • Display or release CERN awareness balloons!
  • Seek recognition from your local government or ministry of health!

Create Your Own Event

For more ideas, read how others around the world have commemorated Ependymoma Awareness Day. You can download the Ependymoma Information Packet to help you promote greater awareness of ependymoma both internationally and in your local community!

Interested in holding an Ependymoma Awareness Day event where you live? No problem! You can order your own Awareness Day kit! Included in the $25 kit, that is available for purchase by clicking here, is an ependymoma information packet, an Ependymoma Guide, 5 buttons, 2 temporary tattoos, 10 butterfly balloons, and 5 stickers!

Contact Your Local Officials

You can create awareness of ependymoma where you live!  In the past, we were honored that Ependymoma Awareness Day was officially recognized by numerous municipalities around the world, including: Colorado, Illinois, Indiana, Kansas, Massachusetts, Michigan, Missouri, New Hampshire, New York, North Carolina, Ohio, Oregon, Pennsylvania, Tennessee, Texas, Virginia, Wisconsin, Harford County, Montgomery County, Shelby County, Trigg County, Washington, DC, Austin, Chicago, Cincinnati, Columbus, Dayton, Detroit, Eureka, Happy Valley, Houston, Ithica, Los Angeles, Madison, Memphis, Palo Alto, Pittsburgh, San Diego, Santa Barbara, Seattle, Sunnyvale, Texarkana, Toronto, Chapel Hill, Schaumburg.

Make sure your town is included in this list in 2020!  You can download a sample proclamation and sample letter asking your local officials to recognize May 3, 2020 as Ependymoma Awareness Day!

Contact Your Local Media

You may also want to contact your local media including newspapers, radio stations and TV stations to let them know about your efforts.  These media outlets are often interested in covering awareness events in their local area. You can download our sample press release asking local media to run a featured story!

Let Us Hear from You!

Please feel free to share your experiences with us and submit information and pictures of your activities so that we may include them in future events and on our website, giving inspiration and direction to others as they get involved in Ependymoma Awareness Day!

Stay Informed with the CERN Newsletter

The CERN Foundation is committed to informing you with the latest ependymoma news and research. Join our mailing list for monthly updates.