Coronavirus Disease Impact and Resources
— Categories: Press Release Posted on March 19, 2020
View some helpful links to important information on ways to stay up to date on the coronavirus (COVID-19) on helpful resources as well as an update on Ependymoma Awareness Day.
The last few weeks have been extremely unique and presented our world with many challenges. Living with an ependymoma, you may already be feeling a sense of burden from existing health related concerns. These times are truly unprecedented and it important to do our best to take care of ourselves both physically and emotionally.
Stay Informed and Healthy
There is a lot of information out there on COVID-19. We recommend trusted sources that are producing the most accurate information and updated regularly. Here is a list of resources to learn about the virus and ways to stay healthy.
- What people with cancer should know from NCI
- Get the latest public health information from CDC
- Get the latest research information from NIH
- Learn about travel restrictions, preparing and government response from USA Government
Appointments and Second Opinions
We recommend contacting your current medical providers directly to ask questions about current treatment plans, physical therapy appointments, or other medical appointments. Given the current situation, we are encouraging physician-to-physician consultation first if there is a need for expert opinion. If this is not an option, you can start the initial process of seeking a second opinion through email or phone at the desired center and follow the guidance from the institution on next steps.
Ependymoma Awareness Day 2020
Our plans to host Ependymoma Awareness Day as a part of the National Brain Tumor Society’s Head to the Hill event on May 3, 2020 in Washington, DC are shifting from a live event to a virtual event. For those of you who have already made travel plans, please cancel those directly. Over the next few weeks, we will be releasing a plan with further details on how to get involved from your home. You can trust we are working hard to unite the ependymoma community and spread awareness around the world about this disease.
Even though there are a lot of changes and evolving details, we are not backing down from our mission – we are committed to improving the care and outcome of people with ependymoma through community support and research efforts.