Share Your Story

This organization would never have been formed if it weren’t for amazing people like you.

It is imperative to share information, as this is a core value of our foundation. You can submit your own stories, poems, articles or anything you consider inspirational or impactful about your personal journey with ependymoma. Your story will then be shared on our website, newsletter and social media. View other inspirational stories.


What to Include

  • A photo of yourself
  • A short bio (3-5 lines about you, where you live, what you do, what your passions are…etc)
  • Your personal story or message
  • Photos that support your story

Share Your Story

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