The CERN Foundation is a collaborative network with a commitment to connecting patients and caregivers – in addition to medical providers – who deal with ependymoma.

This section of our site is dedicated to helping anyone affected by ependymoma connect with the foundation through patient stories and, perhaps most importantly, each other. And by creating more awareness of ependymoma, our hope is to increase public recognition of this rare tumor and the need for clinical studies to improve early diagnosis, standardize treatment and improve the health status of those living with this disease.

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Inspiration Stories

A Unique Bond Between a Father and Daughter

Allie and her father both had brain surgery to remove a tumor resulting in a deeper relationship.

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A Story of Recovery from Spinal Cord Tumor Surgery

Dawn shares what it's like recovering from surgery while giving those who are on a similar journey the reassurance that they are not alone.

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Michelle My Hero

Michelle's neurosurgeon discovered multiple tumors along her spine, but through it all she remains positive.

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An Extraordinary Destiny

Adam shares his experiences by writing a book that includes quotes that gave him encouragement during his ependymoma treatment.

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Share Your Story

Help others who are going through similar experiences by sharing your ependymoma journey.


Ependymoma Awareness Day 2017

The sixth annual Ependymoma Awareness Day will be held on May 8, 2017. Find out how you can get involved!

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Ependymoma Awareness Day 2016

For the fourth annual Awareness Day, a butterfly release was held on Monday, May 2, 2016 in Washington, DC during the National Brain Tumor Society's Head to the Hill event.

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Ependymoma Awareness Day 2015

A butterfly release was held at St. Jude Children’s Research Hospital in Memphis, Tennessee, on May 5, 2015 to commemorate the fourth annual Ependymoma Awareness Day.

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Ependymoma Awareness Day 2014

In an effort to raise awareness of ependymoma, patients, caregivers and medical professionals from around the world dedicated April 10, 2014 as the third annual Awareness Day.

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Ependymoma Awareness Day 2013

Hundreds of brightly colored butterflies covered the skies over St. Jude Children’s Research Hospital as they were released by patients and CERN investigators on April 18, 2013.

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Ependymoma Awareness Day 2012

CERN commemorated Awareness Day with a mass butterfly release that took place at the semi-annual CERN investigator meeting on April 19, 2012.

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Stay Informed with the CERN Newsletter

The CERN Foundation is committed to informing you with the latest ependymoma news and research. Join our mailing list for monthly updates.