Awareness

The CERN Foundation is a collaborative network with a commitment to connecting patients and caregivers – in addition to medical providers – who deal with ependymoma.

This section of our site is dedicated to helping anyone affected by ependymoma connect with the foundation through patient stories and, perhaps most importantly, each other. And by creating more awareness of ependymoma, our hope is to increase public recognition of this rare tumor and the need for clinical studies to improve early diagnosis, standardize treatment and improve the health status of those living with this disease.


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Inspiration Stories

An Extraordinary Destiny

Adam shares his experiences by writing a book that includes quotes that gave him encouragement during his ependymoma treatment.

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Mother Writes Book to Help Others Cope

Shawn’s mother writes a book, A Sippy Cup of Chemo, to help other brain tumor families travelling down the same path.

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Imagine

Henry’s mom shares a poem of the challenges faced when coping with an ependymoma and the importance of Childhood Cancer Awareness Month.

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Living Each Day to the Fullest

After falling on a playground at school, Sophia cried for days in pain. Doctors later discovered a tumor in her spine.

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Share Your Story

Help others who are going through similar experiences by sharing your ependymoma journey.



Events

Ependymoma Awareness Day 2016

For the fourth annual Awareness Day, a butterfly release was held on Monday, May 2, 2016 in Washington, DC during the National Brain Tumor Society's Head to the Hill event.

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Ependymoma Awareness Day 2015

A butterfly release was held at St. Jude Children’s Research Hospital in Memphis, Tennessee, on May 5, 2015 to commemorate the fourth annual Ependymoma Awareness Day.

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Ependymoma Awareness Day 2014

In an effort to raise awareness of ependymoma, patients, caregivers and medical professionals from around the world dedicated April 10, 2014 as the third annual Awareness Day.

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Ependymoma Awareness Day 2013

Hundreds of brightly colored butterflies covered the skies over St. Jude Children’s Research Hospital as they were released by patients and CERN investigators on April 18, 2013.

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Ependymoma Awareness Day 2012

CERN commemorated Awareness Day with a mass butterfly release that took place at the semi-annual CERN investigator meeting on April 19, 2012.

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Stay Informed with the CERN Newsletter

The CERN Foundation is committed to informing you with the latest ependymoma news and research. Join our mailing list for monthly updates.