Ependymoma Awareness Day 2017

Ependymoma Awareness Day 2017

Now in its sixth year, this campaign is an international effort from the CERN Foundation in partnership with medical professionals, patients and caregivers from around the world.

Together, we have designated May 8, 2017, as Ependymoma Awareness Day!

The CERN Foundation is thrilled to announce that this year’s Ependymoma Awareness Day will be held during the National Brain Tumor Society’s “Head to the Hill” event in Washington, DC!

The CERN Foundation is honored to be a part of this two-day event, held on May 8-9, at which brain tumor advocates from across the country descend on our nation’s capital to share their stories and advocate for public policy issues that are important to the brain tumor community.

CERN encourages all those who support the ependymoma cause to attend the 2017 Head to the Hill event! Together we can drive the agenda forward for better treatments, stronger research, and ultimately a cure.

Register to participate at Head to the Hill

Butterfly Release

The CERN Foundation will commemorate Ependymoma Awareness Day with a mass butterfly release that will take place on May 8 during the 2017 Head to the Hill activities. If you would like to attend the butterfly release, please RSVP to administrator@cern-foundation.org. The butterfly release will be video-taped and posted on the internet so that supporters unable to attend can participate and share in this moving occasion. View the 2016 Ependymoma Awareness Day butterfly release.

We ask that you encourage those you know to purchase a live butterfly (or several butterflies!) that will be released during the awareness day ceremony!

Create Awareness Where You Live!

On a local level, we urge you to participate in an ependymoma awareness activity, helping to create a greater understanding of the disease.

You could support awareness in the following ways:

  • Create your own Awareness Day event!
  • Raise funds to help with research!
  • Share information on ependymoma with another person who has never heard of it!
  • Tell your doctor and healthcare providers about Ependymoma Awareness Day!
  • Document your awareness efforts on your Facebook page, Twitter account or blog and use the hashtag #CERNbutterfly!
  • Educate colleagues, co-workers, school groups and congregations!
  • Order and wear an ependymoma awareness lapel pin or CERN hat!
  • Release white butterfly balloons with the CERN awareness butterfly logo printed on them!
  • Seek recognition from your local government or ministry of health!
 

 

For more ideas, read how others around the world have commemorated Ependymoma Awareness Day. You can download the Awareness Kit  as a guide to help you promote greater awareness of ependymoma both internationally and in your local community!

View or download our Awareness Day kit

Show Your Support!

The CERN Foundation is currently engaged in a range of community outreach programs and support efforts designed to have a positive impact on the lives of children and adults living with ependymoma, as well as their families and caregivers. Please consider supporting our efforts by creating your own online fundraising campaign, making a donation, purchasing an awareness butterfly or wearing an awareness support pin or hat.

Interested in holding an Ependymoma Awareness Day event where you live? No problem! You can order your own Awareness Day kit! Included in the $25 kit, that is available for purchase by clicking here, is an Awareness Day packet of information, an Ependymoma Guide, 5 buttons, 2 temporary tattoos, 10 butterfly balloons, and 5 stickers!

Contact Your Local Officials

You can create awareness of ependymoma where you live! In the past, we were honored that Ependymoma Awareness Day was officially recognized by numerous municipalities around the world, including: Colorado, Illinois, Indiana, Massachusetts, Michigan, Missouri, New Hampshire, New York, North Carolina, Ohio, Oregon, Pennsylvania, Tennessee, Texas, Virginia, Wisconsin, Harford County, Montgomery County, Shelby County, Trigg County, Washington, DC, Austin, Chicago, Cincinnati, Columbus, Dayton, Detroit, Eureka, Happy Valley, Houston, Ithica, Los Angeles, Madison, Memphis, Palo Alto, Pittsburgh, San Diego, Santa Barbara, Seattle, Sunnyvale, Texarkana, Toronto, Chapel Hill, Schaumburg

Make sure your town is included in this list in 2017! You can download a sample proclamation and sample letter asking your local officials to recognize May 8, 2017 as Ependymoma Awareness Day!

Contact Your Local Media

You may also want to contact your local media including newspapers, radio stations and TV stations to let them know about your efforts. These media outlets are often interested in covering awareness events in their local area. You can download our sample press release asking local media to run a featured story!

Let Us Hear From You!

Please feel free to share your experiences with us and submit information and pictures of your activities so that we may include them in future events and on our website, giving inspiration and direction to others as they get involved in Ependymoma Awareness Day!

Stay Informed with the CERN Newsletter

The CERN Foundation is committed to informing you with the latest ependymoma news and research. Join our mailing list for monthly updates.