Inspiration Stories

This portion of the website is dedicated to patients and caregivers by allowing them to share their ependymoma stories.

This organization would never have been formed if it weren’t for amazing people like you. It is imperative to share information, as this is a core value of our foundation. Please, take time to read about some remarkable lives and if you feel comfortable, submit some insight into your own personal journey.

Sofia the Warrior

— Categories: Categories: Pediatric   Spine     Posted on December 4, 2017

After Sofia slipped on the wet tile floor, doctors discovered a tumor located in her tailbone.

Every Child Deserves a Bright Future

— Categories: Categories: Brain   Pediatric     Posted on July 14, 2017

Chris' mother is determined to make a difference in his memory so she created Fighting Ependymoma that gives hope to children fighting ependymoma.

Burke Speaks at Ependymoma Awareness Day

— Categories: Categories: Brain   Pediatric     Posted on May 26, 2017

Burke shared his journey with ependymoma to patients and caregivers at the Ependymoma Awareness Day butterfly release on May 8, 2017.

Mother Writes Book to Help Others Cope

— Categories: Categories: Brain   Pediatric     Posted on October 18, 2016

Shawn’s mother writes a book, A Sippy Cup of Chemo, to help other brain tumor families travelling down the same path.

Imagine

— Categories: Categories: Brain   Pediatric     Posted on July 26, 2016

Henry’s mom shares a poem of the challenges faced when coping with an ependymoma and the importance of Childhood Cancer Awareness Month.

Living Each Day to the Fullest

— Categories: Categories: Pediatric   Spine     Posted on March 24, 2016

After falling on a playground at school, Sophia cried for days in pain. Doctors later discovered a tumor in her spine.

Blayne Overcomes Ependymoma

— Categories: Categories: Brain   Pediatric     Posted on February 29, 2016

Blayne’s parents discovered a brain tumor when he was just a toddler. Now at age 20, he has overcome his treatment side effects.

Sienna’s Hope

— Categories: Categories: Brain   Pediatric     Posted on November 30, 2015

Kylie’s blog, Sienna’s Hope, documents her daughters journey with anaplastic ependymoma. This has helped her cope, but she also wanted to share her blog with other families facing the same battles.

The Day Our Lives Changed Forever

— Categories: Categories: Brain   Pediatric     Posted on September 18, 2015

Doctors told Ava’s family that she had a brain mass and needed to have surgery. They discovered a grade III anaplastic ependymoma.

Dismuke Family Speaks at the 2015 Ependymoma Awareness Day

— Categories: Categories: Brain   Pediatric     Posted on May 25, 2015

Ashley shares Ingram’s journey with anaplastic ependymoma to patients and caregivers at the 2015 Ependymoma Awareness Day.

A Mother Takes Matters Into Her Own Hands

— Categories: Categories: Pediatric   Spine     Posted on April 25, 2015

With the lack of funding and more research needed for myxopapillary ependymoma, a mother decides awareness for this rare cancer.

Emma Continues to Smile Through Cancer

— Categories: Categories: Brain   Pediatric     Posted on December 17, 2014

When Emma was just 13-months-old, her pediatrician noticed a slight drooping on one side of her face, which was caused by an anaplastic ependymoma.

Adam Brings Hope to Others

— Categories: Categories: Brain   Pediatric     Posted on September 15, 2014

Adam, diagnosed with grade III ependymoma, wanted to help other kids that are going through similar experiences by shaving his head.

Sebastian’s Mother Determined to Beat Cancer

— Categories: Categories: Brain   Pediatric     Posted on June 10, 2014

Sebastian, who was only 7-years-old, began complaining of headaches and vomiting. His mother, who also battled cancer, discovered her son had a grade II anaplastic posterior fossa ependymoma.

Mother Creates Awareness to Find a Cure

— Categories: Categories: Brain   Pediatric     Posted on May 27, 2014

After Ethan was diagnosed with a posterior fossa ependymoma, his mother decided she can’t sit back and do nothing.

Building a Legacy in Honour of Connor Dawes

— Categories: Categories: Brain   Pediatric     Posted on February 11, 2014

After Robert passed away from anaplastic ependymoma, his mom and family honour him by creating the RCD Fund.

Making The Most of Every Day With Ethan

— Categories: Categories: Brain   Pediatric     Posted on October 30, 2013

When Ethan was only one, his family noticed something wasn’t quite right. He was later diagnosed with grade 2 ependymoma in the posterior fossa.

Morissa is One Tough Cookie

— Categories: Categories: Pediatric   Spine     Posted on July 26, 2013

Mandy, Morissa’s mom, went to numerous doctors to finally find out that her daughter was diagnosed with a spinal myxopapillary ependymoma.

Ian Speaks At Ependymoma Awareness Day

— Categories: Categories: Brain   Pediatric     Posted on May 2, 2013

Ian shares his sons story, Colin, who was diagnosed with anaplastic ependymoma at age two, during the 2013 Ependymoma Awareness Day.

Kimberly Delivers Speech At Butterfly Release

— Categories: Categories: Brain   Pediatric     Posted on April 24, 2013

Kimberly honors the memory of her son, Ryan, at the 2013 Ependymoma Awareness Day. Ryan was diagnosed with ependymoma in 2007 and sadly lost his battle on May 26, 2012.

Brave Maisie

— Categories: Categories: Brain   Pediatric     Posted on March 1, 2013

Maisie was diagnosed with supratentorial anaplastic ependymoma at the age of three. She has no idea how strong she really was and still is to this day.

Taking One Step At A Time

— Categories: Categories: Brain   Pediatric     Posted on January 25, 2013

Hannah doesn’t dwell on that past and believes that God put her on this earth for a reason, diagnosed with ependymoma at age four.

Shelby’s Story

— Categories: Categories: Brain   Pediatric     Posted on November 21, 2012

When life gave Shelby lemons, she made lemonade and shared its sweetness with everyone she knew. She was diagnosed with grade III ependymoma at one.

Ivory’s Mother Continues To Hope

— Categories: Categories: Brain   Pediatric     Posted on October 4, 2012

Julie shares her advice and experiences as a mother of Ivory, diagnosed with grade II ependymoma.

Zsila Overcomes Ependymoma and Gives Back

— Categories: Categories: Brain   Pediatric     Posted on August 6, 2012

After Zsila was diagnosed with grade II ependymoma in 1994, she decided to give back and become a Pediatric Neoro-Oncologist.

Mother Gives Advice on Newly Diagnosed

— Categories: Categories: Brain   Pediatric     Posted on June 17, 2012

Sue, Julia’s mother, shares her advice and experiences that she has learned from her daughter’s battle with ependymoma.

Eric Honors His Daughter

— Categories: Categories: Brain   Pediatric     Posted on May 8, 2012

Eric delivers a speech at the 2012 Ependymoma Awareness Day butterfly release to honor his daughter, Kayla, who passed away at the age of 12 after battling ependymoma.

Baby Minty’s Story

— Categories: Categories: Brain   Pediatric     Posted on May 2, 2012

Mei Lai shares her story about her daughter, Minty, who was diagnosed with malignant anaplastic ependymoma.

Alexa’s Gifts of Hope Foundation

— Categories: Categories: Brain   Pediatric     Posted on March 11, 2012

Alexa’s Gifts of Hope Foundation raises money for pediatric brain tumor research and helps support children who are afflicted with ependymoma.

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