Ependymoma Awareness Video
The Ependymoma Awareness Day virtual program includes educational and awareness content from CERN Advisors and Members, historical clips from previous EAD events, key issues from the ependymoma community, and concludes with a butterfly release.
“I watched and thought - if only THIS is what people would see when they Google 'ependymoma'!!! Such great information!” Beth
Connecting you with other ependymoma patients and caregivers.
Connecting you with neuro-oncologists who specialize in treating ependymoma.
Where to Start
If you or a loved one has just been diagnosed, we are here to help you get the facts on ependymoma. Learn More
Ways you can help care for yourself or a loved one during and after ependymoma treatment. Learn More
Learn how ependymoma is diagnosed, what it looks like and what to do after being diagnosed. Learn More
Find resources from other patients and caregivers and experts in the medical community. Learn More
To make the best ependymoma treatment decisions, you need to understand all of your options. Learn More
Ways you can help us expand our understanding of ependymoma, raise additional funding, or create more awareness of ependymoma. Learn More
“When I was first diagnosed six years ago - my life was turned upside down. I contacted the CERN Foundation and they were so kind and genuinely interested in providing information and direction. With their help, I was able to find a medical center experienced in treating ependymoma.”
CERN Foundation Releases Ependymoma Community Blog Series
Featuring a collection of articles written by members of the ependymoma community. Some authors are ependymoma survivors and others are care partners. They share their advice to help others with ependymoma cope with their illness.
Intimacy and a Brain or Spinal Cord Tumor Diagnosis
A rare disease diagnosis is isolating and impacts so many areas of life including the taboo subject of self-image and sexuality. After all, there may be no other factor as important in the ‘quality of life’ discussion as intimacy.
2022 Ependymoma Awareness Day Outreach Report
In a groundswell of international support, patients, care partners, medical professionals and advocates participated in a variety of events marking May 10, 2022 as Ependymoma Awareness Day.
Saying Goodbye to the Patient Who Inspired the CERN Foundation
While it was never his intention or desire, Dallas Mathile’s diagnosis with an anaplastic ependymoma in 2002 would spark the creation of a unique research and advocacy organization that today serves as a collective voice, a safe and caring place, and an innovator, all for the ependymoma community.