The Risk Project intends to answer the one question that plagues most all patients: Why did this happen to me? CERN is expanding the work of our successful Ependymoma Outcomes Surveys to improve our understanding of risk factors associated with the occurrence of ependymoma. Sign up today!
Connecting you with other ependymoma patients and caregivers.
Connecting you with neuro-oncologists who specialize in treating ependymoma.
Where to Start
If you or a loved one has just been diagnosed, we are here to help you get the facts on ependymoma. Learn More
Ways you can help care for yourself or a loved one during and after ependymoma treatment. Learn More
Learn how ependymoma is diagnosed, what it looks like and what to do after being diagnosed. Learn More
Find resources from other patients and caregivers and experts in the medical community. Learn More
To make the best ependymoma treatment decisions, you need to understand all of your options. Learn More
Ways you can help us expand our understanding of ependymoma, raise additional funding, or create more awareness of ependymoma. Learn More
“The CERN Foundation provided me with a wealth of knowledge. There is so much information; between research, studies, and families’ stories. I never had to feel alone. I took refuge in the information provided in those early days of my son’s diagnosis. It was scary, but with knowledge, I felt I had taken some of the power back. I wasn’t quite as helpless.”
CERN Foundation Releases People of CERN Series
This series of short films, produced by the CERN Foundation, aims to humanize the experience of ependymoma by sharing real people's stories and ultimately raising awareness about this rare form of brain and spinal cancer.
The Fourth Biennial Ependymoma Consensus was held at NIH, February 20 to 22, 2019. Neuro-oncology experts worldwide met to advance their knowledge and collaborate to find better treatments for people with ependymoma.
Ependymoma Awareness Day is May 5, 2019
Join the CERN Foundation in Washington, DC, to raise awareness of ependymoma! On May 5, 2019, CERN will mark the eighth Annual Ependymoma Awareness Day with the release of over 1,000 butterflies to honor loved ones, caregivers and to increase public recognition of this rare tumor.
CERN Supported Research Shows Improvements in Patient Care and Outcomes
Since its founding in 2006, the CERN Foundation has been committed to improving the care and outcome of people with ependymoma through community support and research efforts. Today, we are excited to share that our support of research and patient and caregiver participation in the research have made a significant impact.