The Risk Project intends to answer the one question that plagues most all patients: Why did this happen to me? CERN is expanding the work of our successful Ependymoma Outcomes Surveys to improve our understanding of risk factors associated with the occurrence of ependymoma. Sign up today!
Connecting you with other ependymoma patients and caregivers.
Connecting you with neuro-oncologists who specialize in treating ependymoma.
Where to Start
If you or a loved one has just been diagnosed, we are here to help you get the facts on ependymoma. Learn More
Ways you can help care for yourself or a loved one during and after ependymoma treatment. Learn More
Learn how ependymoma is diagnosed, what it looks like and what to do after being diagnosed. Learn More
Find resources from other patients and caregivers and experts in the medical community. Learn More
To make the best ependymoma treatment decisions, you need to understand all of your options. Learn More
Ways you can help us expand our understanding of ependymoma, raise additional funding, or create more awareness of ependymoma. Learn More
“When I was first diagnosed six years ago - my life was turned upside down. I contacted the CERN Foundation and they were so kind and genuinely interested in providing information and direction. With their help, I was able to find a medical center experienced in treating ependymoma.”
CERN Foundation Releases Ependymoma Community Blog Series
This series of blog articles is written by members of the ependymoma community. Some are ependymoma survivors and others are caregivers. They share their advice to help others with ependymoma cope with their illness.
Consulting with Dr. Google
Ependymoma caregiver, Tamiko, shares how to navigate the internet when searching for disease information.
Coping with Scans
Ependymoma survivor, Jennifer, shares how she copes with follow-up brain and spine scans and waiting for the results.
Be Your Own Advocate
Ependymoma survivor, Sarah, shares three tips to help guide you through your ependymoma journey.