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Taboo Cancer Topics
— Categories: Ependymoma Community Posted on March 30, 2020
Ependymoma survivor, Matt, shares how to bring up taboo cancer topics with your doctor - prognosis, intimacy, embarrassing side effects, second opinions and disagreeing with the treatment plan.
Get help! Don’t Fight Cancer Alone
— Categories: Ependymoma Community Posted on November 18, 2019
Ependymoma survivor, Matt, shares how to utilize resources the medical system makes available.
What advice do you have for other ependymoma parents?
— Categories: Ependymoma Community Posted on September 24, 2019
We asked our community to share their advice for other ependymoma parents with a newly diagnosed child. We received numerous responses. Thank you for your participation! Read their advice.
CERN Foundation Releases Ependymoma Community Blog Series
— Categories: Ependymoma Community Posted on August 26, 2019
This series of blog articles is written by members of the ependymoma community. Some are ependymoma survivors and others are caregivers. They share their advice to help others with ependymoma cope with their illness.
Consulting with Dr. Google
— Categories: Ependymoma Community Posted on August 19, 2019
Ependymoma caregiver, Tamiko, shares how to navigate the internet when searching for disease information.
Coping with Scans
— Categories: Ependymoma Community Posted on August 5, 2019
Ependymoma survivor, Jennifer, shares how she copes with follow-up brain and spine scans and waiting for the results.
Be Your Own Advocate
— Categories: Ependymoma Community Posted on July 31, 2019
Ependymoma survivor, Sarah, shares three tips to help guide you through your ependymoma journey.
CERN Foundation Brings People Together
— Categories: Ependymoma Community Posted on July 3, 2019
CERN brings two ependymoma survivors together across the country and globe. Adam is from California and Allie is from Kansas. Both were diagnosed with ependymoma, in almost the same spots in the left occipital lobe.